After being diagnosed with chronic nerve pain and then experiencing some neurological symptoms I ended up seeing a neurologist. I had an mri which showed lesions. Over the phone the dr told me my mri results were consistent with her first assessment that I was having “silent migraines” but then she had me come to her office and told me that while a dr with less experience with ms would likely disregard it she (with her experience) saw my mri results as consistent with an early ms diagnosis and said she could only confirm the diagnosis with a lumbar puncture.
Unfortunately, during my visit with neurologist I was experiencing some “brain fog” so I didn’t ask her about the (weird) discrepancy regarding what she said over the phone and what she was now saying. I did ask if the lumbar puncture were to confirm ms if that would change my treatment. She said no so I said no to the puncture.
My b12 and vitamin d tests came back low and after a few months of taking supplements and getting glasses (cured my vertigo) I took ms off the table as a possibility. Over a year later, I’m doing really well now but new nerve pain has come along in my hand and jaw and I’m thinking ms may still be a possibility.
I will go to my gp this week but I’ll put off seeing a neurologist till January when, hopefully, my insurance is better and I can see someone other than the neurologist I mentioned.
Anyone have any tips for confirming yes/no ms like what to ask a dr?
Did you find a diagnosis helpful even if you only took medications for symptoms of ms?
How icky is the lumbar puncture? I have lumbar radiculopathy and was in a lot of pain for a few years, it’s finally not a big deal and well managed and I’m terrified the puncture will somehow recharge the pain!!!
Did you get a lumbar puncture to confirm a diagnosis? If so, how important/helpful do you think it was?
Any feedback would be awesome and appreciated.
Thanks for reading