I just got the long awaited call to come in for my LP and I’m so happy that this is the final furlong. As in, I know they might take a watch and wait but for me, either seeing those bands there or not will mean something. I know there’s a small statistic who don’t carry the Oligoclonal bands and I do get that, but I’m assuming I won’t be one! I don’t think I am having any Evoked Potential as my Neuro has just referred for this one only following my MRI.
I’m now panicking that I will pick up Corona from my NHS job so should stay home until it happens…clutching at straws but I don’t want to risk not having my test…is that nuts?
I’m having a “no painkillers” day today. I want to feel any little symptom that comes up. So far, just left foot pain and low back pain (but the back pain is quite normal for me). Also a lot of Tinnitus but that is normal too.
I was at the point of looking into private consultation. However, I know that I would merely be diagnosed then put back into an nhs system and I don’t want to risk going to the start all over again.
I just wanted to say here that anyone waiting for diagnostics, take heart - things are starting up again all over (I’m London) and I was expecting a way longer wait time than this. I’m really encouraged.