2years ago I had lower back pain, couldn’t move, went to osteopath that I had used before, he did his thing but didn’t get the click he got in the past, 18moths ago I was dx ms, now on dmds rabif, but still feel like my lower back pain is causing my walking & balance difficulty, no one is listening to me, my wife says I’m nuts they’ve done all the tests, has anyone else got relly bad back problems?? Not sure if its part of the ms or separate,
Hi Graham
Yes Me. I have really bad lower back problems which cause me mega discomfort every day. My back is painful in the rear of hip area which then causes me to walk leaning on one side, which then causes me issues with my right knee and leg.
I am still undiagnosed, (“probable MS” due to a dimwit neurololgist, who dismisses everything I say) I had a lumbar puncture recently which was a nightmare as I couldn’t manovure into a painfree position for them to get the needle in correctly.
I feel your pain fella, no one really listens.
I got diagnoised with ms and a few weeks later had excruciating pain in legs, neuro said that it wasnt ms and anxiety that caused it and got me refered to a physiologist , who after 8 weeks wrote a report that it wasnt anxiety. I pushed for anothe lower back mri and was told there wasnt a problem with my spine. I then went to a chiropractor for months which really helped and got me driving and walking again. I saw a different neuro surgeon a month ago who looked at my mri from last april and have been told I had z prolased disk with nerve compression. Im so angry but glad I followed my instinct. Im now doing physio and a back class which I shoukd have got 18 months ago. Zoe
Thanks for your comments, I’m sure we are all G/pigs, the nuroes have no real idea what to do with us, my neurologist first thought I had a prolapse spin, sent MRI to nuro surgeons, when they said no she said it must be ms then. Lol
Ues Graham I have suffered with low back pain since diagnosis in 2005. The Gabapentin helps.
Take care.
Shazzie x
[quote=“Shazzie”]
Ues Graham I have suffered with low back pain since diagnosis in 2005. The Gabapentin helps.
Take care.
Shazzie x
[/quote] Thanks haven’t got any of that, baclofen pregabalin, but iv been cuting the baclofen out slowly, think its making me feel week, who knows, just try anything, in case it helps, nothing has yet, apart from the steroids 18months ago. G.
Hi Graham,
I have lower back pain but have found neurophysio really helped as there were many muscles in and around my back/hips/bum that weren’t working like they should, which weakened my back and caused the problems. I have to confess if I stop the exercises,which I have recently (through laziness), then the pain comes back. You can self refer in England to neurophysio and, after a wait to be seen, I found the help really useful-just need to keep it up!! Hope you can get some relief in one way or another.
You are not alone!
Good luck.
BF
Hi, have you thought about your posture and support cushions?
I`ve suffered with chronic lower back pain and got my wheelie cushions sorted and back pain is almost nil.
pollx
pain, particularly in my lower back, has been the symtom that’s hardest to live with (so far, touch wood, fingers crossed?!), since my health problems really kicked off, after a fall on ice in 2003 (SO long ago, yikes). i injured my back, which confused things when i started to present with neuro problems, and it took a while to be taken seriously and be given MRI’s and a lumbar puncture. all came back positive for ms, if thats the right way to put it? i’ve got a series of lesions on my spinal cord down my cervical spine and into the top of my thoracic vertebrae, apparently this is probably what’s causing my pain, along with various other symptoms.
thankfully, when i finally got my dx, i also got a great neurologist who’s tried different pain meds until i eventually got on a combination that allows me to manage my pain reasonably effectively on the majority of days. i’m long past worrying about what possible long term effects the meds might have, because, without them i’d be in a padded cell, frankly, it has to be about quality of life really. in the first few years, pain stopped me from being able to sleep anywhere near enough, it made me feel sick which stopped me being able to eat very much, i was just in pain, exhausted and weepy all the time.
as much as i needed the right meds, i also found that working out a stretching routine to carefully stretch out the muscles in my back and round my pelvis was also a real breakthrough in managing my symptoms. doing the routine 2 times on good days and more when needed helps relieve some of the pain. it’s particularly helpful in delaying the almost inevitable ‘early morning pain call’.
i hope you find out if it’s your ms or a separate back problem that causing your pain and get whatever eases your pain sorted out soon.
sorry for rambling.
wendy x