I began with mobility problems and needed a wheelchair within 2 years of the onset.
As my symptoms were typically PPMS, it was suspected I had it, but none of my 4 MRIs, 2 lps, 2 emgs, a vep and gallons of blood tests showed any proof of it, I had no diagnosis for some years.
Then I was diagnosed with it in 2003. Well in 2008, that was changed to HSP… hereditary spastic paraplegia.
Like PPMS there is no cure and no treatment. The worst thing about it is that it carries a 50% chance of being passed on to my offspring. It hasn’t shown in any of my 22 cousins, aunts, uncles, siblings or anyone…just me and I pray it stays that way.
Great, I’ve got to go in the next month or two anyway, I’ll mention it when I go.
I’ve always been a bit on the emotional side, but then again I was DX’d at 16 and was told I’d had MS since 14 (am 30 now), so maybe it’s not my personality as I thought and it’s just that I’ve had this symptom for a long time.
But my MS doesn’t affect me much physically at all (thankfully), so I feel like I’m using it as an excuse.
I’m just going round in circles now so I’ll stop typing!
Oh I self medicate with ice cream most days…mind you, hubby gets it out of the freezer for me. Must remember to make that clear when I do my PIP forms!
Cherry ice cream is really very nice. So is salted caramel. And of course you can’t beat a magnum. Or just a decent 99. And I’ve found that a chocolate cornetto is a pretty lovely thing on a hot day.
Failing all of the above, Amitriptyline does me the world of good, it seems to calm down overheated legs a bit, but in general you need to take it before the heat has done the damage.