hi i was diagnosed with relapsing remitting ms back in june and ive had the tears the anger for while now ive had like a fuzzy sensation in both arms and they feel like concrete im also having short blackouts can anyone give thier advice
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Hi Kerry
Sorry to hear you’ve joined the club no-one wants membership of.
First of all - get another appointment with your MS Neuro / MS Nurse let them know about the black outs (if you haven’t already). I usually write a letter to my Neuro/MS Nurse with anything new or getting worse requesting an appointment.
Do your symptoms get worse in hot weather / overly hot room(s) / hot bath or shower? A lot of people with MS have an intolerance to heat (or cold). If you do have heat intolerance, make sure you stay cool - iced drinks, ice packs if necessary - I have an ice-vest that I can wear if it gets very hot.
Check to be sure you are not deficient in Vits D and B12 - your GP should be able to check this with a simple blood test. PwMS tend to be deficient in Vit D quite often.
In the meantime - if you haven’t already, and I am sure you have read this quite a lot: Meditation - you don’t need special clothes or cushions etc. There are plenty of meditation videos on YouTube to help you get started.
Check if there is an MS Centre that can offer hyperbaric oxygen therapy near you.
The initial angry/sad/weepy stage is a perfectly normal reaction, getting into the ‘how am I going to manage this *****’ is a good place to be, just take your time and don’t worry if you get weepy fits from time to time; I think we all have that, regardless of how long we’ve been dealing with MS.
Just to say, yes, follow the suggestions from @TheresaB . Especially about the blackouts for which a GP appointment sounds very advisable
I take a high strength d12 tablet every day and I take b12 tablets I feel alone in the world even though I’m not I have an amazing g husband who cares for me and I want to work for as long as I can but I’ve had to admit defeat and go off sick my ms nurse has got no appointments till October but he said he will rearrange if someone cancels
I know something has changed as I can feel it and they always say no one knows their own body like yourself
Hi I have just had diagnosis after 12 long weeks, using a zimmer frame in house and wheelchair for when I have someone to take me out. I feel so alone , get up in morning hoping someone there to assist me down the stairs and then usual get dressed and then sit on couch praying someone will visit , appeared to have lost a lot of friends , my husband is a great help and so is my daughter but they don’t seem to understand how lonely I am, I see all my friends having meals together and we don’t get asked as I have terrible taste and smell so not been able to eat or drink much and my wheelchair is not a good look. How do I get past this feeling or is it something I have to get used to.