Good Morning. Feeling annoyed, scared and angry and sorry for myself these last few days.
Does anyway else ever feel like that? I feel like Ms has sneaked up on me and stolen my life.
l am new diagnosed to Ms despite having symptoms on and off for six years.
l am a single Mom and work full time.
I have been off work for six months and now back on rehab programme. I work as mortgage underwriter so need to be full alert to do my job.
I am awaiting to see if l can go on Dml tysobri, my bloods have been in a Denmark for 4 weeks awaiting to be tested.
l had major attack six months ago,which has left me only able to walk and drive distances . I won’t go anywhere l don’t know due to mobility issues. This latest attack has left me unable to work, run a home or even socialise properly.
Hot weather has enchanced my Ms symptoms these last few days. Does anyone else feel like that?
I suppose my question is does what l write hit a chord with anyone?
I am sick of hearing phrases “You look well” and " God ever gives you more than you can handle". Lol x
Thank you so much for your reply your kind words have had me in tears.
I love a good g & t too…and sunbathing with a good book. I think I will probably need to find some other vices now. Lol.
l guess with Ms l need to accept it as an unwelcome relative who pops in Christmas to say hi. God it’s hard though l really want them to go home.
At this stage l am still annoyed l can no longer go dancing or wear heels. My girls would say l couldn’t dance before l was ill though ha ha. I do realise that sounds incredibly spoilt though.
I do hope that once they start me on Tysabri it will help.
l realise on reflection l am so used to living life on a treadmill and on a fast pace before l was ill. Does that make sense? x
I know exactly how you feel and it bloody sucks! I was used to running round 16 hours a day trying to sort kids, work, home etc etc plus trying to occasionally have a social life and now I cant drink and can barely walk back to the car from the pub - well some things never change!!
Everything changes and I dont know if its just me but I am constantly nervous about what will happen next and if I will be able to trust my body again.
You’ve just got to keep plodding but every once in a while let yourself have 5 minutes to have a mope and then get your butt back up and plod on again. We will all find a way to cope and have fun again… says the optimist!