Hi - Haven’t posted here before but thought I’d give it go. My current issue is that I know all the practical things to do in hot weather to lessen symptoms by keeping cool but the worsening of my ability to get around (and do the things that keep me sane!) is really affecting my mood. Not sure what else to add but just wanted to share with people who will know what I’m talking about! Ive had MS for over 30 years and I know I’m lucky that I am still as mobile as I am (no walking aids) - feel guilty about that too!
Take the win, ArtyAli! We all have to take them where we can find them. 
The hot weather is just miserable, isn’t it? At this time of year I feel much more disabled relative to civilians than I do at any other time of year and for just the reasons you have described. You can do all the things to mitigate the effects, but there really is only so much you can do, I’m afraid.
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Hi ArtyAli,
I’ve taken to just accepting it. Still affects my mood. It’s so frustrating but we know our own bodies. Which as you’ll know can vary day to day hour by hour.
Just the usual do little thing, rest, moods a bit better try another thing rest etc.. The issue I find is if something makes it harder than I planned, such as take out pre-batched soup… oops dropped it taking it out of the fridge because of stupid hands/arms. Now I have a floor to clean and no lunch… when in severe pain it’s hard not to completely lose the rag, but it won’t do any good.
Rest, plan go back again. I had been toying with getting proper aircon but it’s really expensive to get and run. Did get an ice machine however which when I’m resting have a shaker thing filled with ice and water and sip it (distraction method for pain thing for me) but also, cools you down (I know you’re more experienced than me but partly works for me).
Did get a “cooler thing” where you put these bricks in the freezer and run that, sorta works but not very well. Something to measure the actual temperature is good. Sometimes don’t feel the heat but wreaked so when can check just go “Ohh that’s why”.
Doubt of use but yeah don’t feel guilty you’re still mobile. What I would say I’d bet it makes people disregard your MS after a good day/hour? Which is actually one of the most annoying things ever! “but you were fine yesterday” 
Cheers,
Andrew
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I go into a hot weather hygge (instead of warm blanket, coffee, cat and netflix while the weather is grey and horrid) I settle in with a lot of snacks (healthy and not so healthy), cooler for chilled/iced stuff, ice packs, iced drinks, bucket/bowl of water in which to dip feet from time to time, book and netflix - the cat has his own cooling pad where he can keep me company.
Acceptance is key to beating the frustration, it does still creep in from time to time, but accepting that I am going to be wiped out until the weather cools is the only way to get through it.
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