Hello multiple sclerotinisers,
Hope you’re enjoying the warm weather.
I took an extended cold shower, this morning, just to wake up my sluggish feeling limbs: is anyone else affected by heat intolerance, come the start of the summer season? 
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Crumbs, yes. I feel more disabled in summer than any other time because it is in summer that the gap is widest between my abilities and those of my peers. And it’s all about the heat.
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Doesn’t everyone?
I used to thrive in the heat but now get knocked out by it in the summer. This year and last my family took an overseas summer holiday without me - I just wouldn’t cope any more.
I keep several gel packs in the freezer for cooling down my head. Cool down your brain and the rest of your body can function.
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Absolutely yes! A still, sunny day and anything much above 20C is a bad day for me (and it’s bad news for me when weather forecasters start talking about how the UK will ‘enjoy’ some good hot sunny days ).
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The heat absolutely plays havoc with my MS, plenty water and sitting down quite often.
Love to all
Mary x
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The heat kills me, can’t sit in the sun any more, so shade, shade and more shade, my hubby has organised a summer house being built for me, work starts the 20th May, simple so I can be outside, but in, as I’m always just sat in out bungalow, so I’m hoping it works.
Jean
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Haven’t tried cooling just my head. Sounds like a good idea so thanks for that
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I have experienced three heatwaves this year, including one in Mexico and the second one in Greece, quite recently. The heat makes me so fatigued, it causes random twitches in my body, and the plegridy injection site does not react well to the heat. I am seriously thinking of having air con installed in the flat in England. When the temperature went up the other day, I went to the local swimming pool twice that day.
Yes, they refer to ‘enjoying’ the sunny days… thinking that people will sunbathe on the grass… anything like that would be dangerous for MSers. Extreme heat can even cause a flair up.
Indeed. I like cool autumn and spring days. Summer is just a time to ‘get through’ although living in Scotland it’s not too bad
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Hi @muchthesamemuchness, yes, heat sensitivity is also one of my bugbears. Too hot or too cold, My legs feel really heavy, as though wading through thick mud! Also, the warm weather makes my legs generate goosebumps🤪 The irony is that I love pottering around in my garden, and I am currently Vit D insufficient, so sunlight exposure is just what the doctor ordered. However, doing so drives me mad as it’s so uncomfortable. Absolutely no rhyme or reason here.
I picked up an infection yesterday with 40c temperature: I fell out of bed unable to move until body temperature decreased. Luckily I don’t live alone, I feel sorry for those that do and suffer from extreme heat intolerance.
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Well i tried to cut the grass today in the sun . Big mistake!!!
Heat intolerance …got a little cut then it turns in to the krypton factor … dragging my legs arms all floppy … gave up and went and layed down in the house …lol im staying in . Will cut the rest at 10.30 pm …
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Yep - I end up looking like I’ve had several pints of cider; would never be able to do the US sobriety field test - 9 heel to toe steps, turn and repeat etc. Watered the allotment at the weekend - crawled upstairs afterward and lay in a bath of tepid/cold water to try to get back to some degree of normal. I always have a cold shower/ice bath after training in warmer weather. Just got an ice cooling vest, will see if that makes a difference.
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I have a vest that contains phase-change gel packs that cool in the freezer, fridge or even iced water. It isn’t very elegant, but extremely useful when going out and about in hot weather – something I prefer not to do but needs must sometimes!
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Snap, I get that too when feeling hot, for me using eating utensils starts to become uncoordinated. 
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I was at the neurologists to day in hospital for a check up i was really 
hot as had been sat in traffic in my daughters car as i cant drive anymore nuro asked me to do heal to toe walk with out my stick …i went head over heals landed on the nuro and his desk and took out his pc 
then told him i was hot haha yeah heat is a killer for me atm and most with MS .
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Basically seeing exactly the same issues I get. Always felt I’m just lazy but it does wipe you out properly.
Even mildly warm at the start can cause a huge episode. Missed alarms for work etc.
I’ve done a few ice baths which are actually really good but I’m a bit chicken about them takes half the day of “I’ll do it later” to shame myself doing it. I should just create a routine.
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Hi, so I’m seeing very similar issues to me and the same remedies to easy things. I use the cold pads, the cooling towels, use these at night to aid sleep, a fan and basically feel completely done in and my pain goes sky high, can’t win, as the same things happens when I get too cold, oh happy days.
Take care all, Jean x
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We moved to the Scottish Highlands last September. This is the easiest Summer I’ve had for years. I used to live in the Southern England. So relieved to have left that extreme heat. It wiped me out.
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