Hi I normally post on I diagnosed but thought I would try here for a bit of advice. I am currently diagnosed with nothing. My symptoms all started in October 2013, had a brain scan that was clearand saw an ms specialist. My symptoms were mainly sensory, my hands were burning but I also had some weakness in left arm and my legs, feet and left shoulder were getting spasms. Neurologist told me it was all in my head which confused me at the time. I continued to get strange symptoms after the appointment so became unsure of his diagnosis. I ended up full of anxiety sand was put on citrralpram in the new year that’s helped loads. My spasms did calm down, however a few days after taking citrralpram I seemed to star getting twitches mainly in my legs and feet but I sometimes feel them in my back and tummy as well. Most my other symptoms have gone in the last few weeks apart from this twitching. I had a spinal MRI after Christmas which showed nothing. Saw my neuro again last week who informed me I have to change my way of thinking as there is nothing wrong with me. He did however give me a small amount of muscle relaxant to take at night but I also get this twitching in the day especially when I’m sat down. The bottom of my legs is also cramping a lot which is a little painful. This is also worse when I’m sat or lay and I have to keep stretching my feet/ moving my legs to relieve the pain in my legs. My question is does anyone know how I can relieve this? I am taking citrralpram, gabapentin ( although reduced this now as most symptoms gone) I take vitamin d3, vitamin b12 and I’m also taking magnesium. I have tried tonic water with quinine but nothing seems to help. I do drink coffee in the day which I’ve always drank before. Sorry for the long winded post. I’m feeling really down since seeing my neuro last week and being told there’s nothing wrong with me, Thanks for reading x
hi, i’m sorry for your ongoing health problems. whether or not it’s ms, you’re clearly having to deal with some very similar problems. have you been given a lumber puncture? might it be possible for you to see a different neurologist for a second opinion? might you be able to see a neurologist privately (assuming that you’ve been seeing an nhs neuro, so far), when i was going through the diagnosis ordeal, i didn’t finally get anywhere until i managed to be examined privately and was given a better assessment and a neurological problem was more apparent. regarding your muscle spasm symptoms, have you tried GENTLY stretching out the affected muscles, slowly building up your range of stretches, i find that this helps reduce muscle spasticity and delays the onset of spasm.
sorry i can’t offer any other advice, i hope you find out what’s going on very soon.
wendy x
Hi Wendy and thanks for the reply. I haven’t been offered a lumber puncture, I had to beg for the spinal MRI. I have also not been given all the blood tests I hear people get when they go to a neuro, just had the standard ones from my gp before seeing neuro. My neuro hasn’t discharged me, says he will see me in 3 months but I’m convinced he thinks it’s in my head because of what he said to me whilst I was there. I have actually emailed his secretary and made a bit of a complaint and thinking of trying to get a second opinion. Unfortunately I am a single mum and can’t afford to see a private neuro as I would have done so already as I’m really fed up of being treated this way. As for the advice regarding my spasms, thanks I will give this a try x