This is a bit out there but I have been researching more ‘natural’ ways of helping my symptoms. I have read so much contradictory information about lions mane supplements, some for the health benefits and help it could give to people with MS, others stating that it could mess with the immune system and cause more trouble.
I’m in two minds as I would prefer to manage pain with things like CBD, physio and light exercise but am aware this might not always be the best for me. I am also a bit weary, as I watched my grandma with MS constantly take steroids and strong painkillers and she died of a heart attack at the age of 72.
Would this be a suitable conversation to have with an MS nurse?
Hi @April2023
I advocate complimentary or alternative treatment for multiple sclerosis, simply because it worked quite well for me, in the early years of the disease.
Although it could be said, it may have been pure coincidence that it worked, I feel downhearted homeopathy is no longer a credible option on the NHS these days.
I don’t see why a health professional would dismiss your interest in exploring alternative treatment to conventional medicine, but I can forsee them advising you to err on the side of caution, as complimentary/alternative medicine is not scientifically proven.
Hope you manage to find a balance that works well for you,
kind regards,
JP
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Thank you that’s so good to know. I really want to try medical cannabis as well but it’s a bit of a taboo in our family. I just believe a lot of the answers are in nature, for a lot of things.
I don’t know where to start with it all to be honest.
Hi @April2023
Yes, my neurologist is reluctant for me to explore medical cannabis, for treatment of multiple sclerosis, due to the potential psychosis side effects.
It certainly is difficult to explore complimentary/alternative treatments on your own, especially with fly-by-night therapists out there, you don’t want to get fleeced.
Take care,
JP
Just to add, I’ve just recently started taking Ashwagandha supplement, after reading and watching information about it online.
I’m quite surprised how it’s made me feel less lethargic, after seeing my neurologist I’ve made a decision to come off DMTs now and instead up my physiotherapy and possibility explore complimentary/alternative treatments, it’s a change I’m more than willing to make after 15 years of DMDs.
Best regards,
JP
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Not sure I would take that option/risk but I hope it works for you
I’m glad that’s working for you. Something to discuss with my MS nurse and consultant for sure.
Thanks @Hank_Dogs
All the DMTs I’ve tried b4 just have the side effects outweighing the benefits.
One DMT potentially could have taken my life, 5 years ago.
I know all conventional medicines have side effects, but I always seem to get the worst of them.
Thanks @April2023
I think it’s good to have a choice of how you want to tackle multiple sclerosis, it’s your body at the end of the day.
I can’t help thinking, would I have just been at the same point now in this disease anyway, if I didn’t take the conventional medicine route, who knows it’s all theoretical?
Whatever treatment works for you might not work for everybody, but definitely good luck with finding it.