After my left leg showing so much improvement on Friday, it got a little worse on Saturday and today (after walking around a museum for a few hours) the weakness is back I wish this would just go away. I had an awful migraine yesterday which lasted from early afternoon until about 9 pm when the migraleve kicked in. MRI on Tuesday. I really hope I get some answers soon. I spoke to my aunt a few days ago. She’s such a lovely and empathetic person sarcasm. Throughout the years there’s ‘always something wrong with me’ and whenever I told her something she’d reply with something like ‘oh I get that and I don’t have ms’ or ‘everyone gets this and they cope better than you’. Well she said something this time that really annoyed me. Her best friend’s husband has ms (I’ve known him all my life) and he’s very ill with it now. They think he’s towards the end of his life now due to infections. She said ‘you don’t want ms’. Really?! Thanks for setting me straight. All these years I’ve wanted it, thinking it would give me super powers. She’s one of the reasons I didn’t go to the doctor for years because she made me feel like a hypochondriac. Does she really think I WANT to be like this?? That I want the ‘ms life’?! Urgh sorry, that turned into a rant. Back to the leg. When I was at a&e, they touched the part where my ankle meets the top of my foot. I have noticed for some time the skin feels a bit numb there. I can feel it but the sensation is so different to the rest of my foot. I don’t even know when that started. Anyone else have this?? It’s all the time, doesn’t come and go.
Hiya, I’m sorry your aunt reacted like that, my nan and aunt are similar, I can’t possibly have anything genuinely wrong with me and if I do they’ve got it worse or know more and that it’s nothing when it’s me. So I can relate. Those sort of people are extremely unhelpful when trying to get help, is there anyone that is supportive at the moment that can help you through and talk about it with? That might be something to investigate with those around you? As for your leg, my leg started as of the second with a hot water feeling and it makes my leg feel weak and achey. I also developed some numbness but haven’t told anyone yet the numbness is permanent at the moment but the water feeling comes and goes. I don’t know what to expect because I’m going to the doctors for the first time at five o’clock. I’m sure others can relate too. Are you being followed up on your a&e appointment? I think you should continue to get investigated. Again I’m sorry you are going through this, just take it one day or even hour at a time and take it steady. Hoping you get some appropriate help soon, take care!
Thanks for your reply. I hope your app went well. MRI in the morning. Then back to waiting for app with the neuro for the results. I hate all this waiting. Going to phone again tomorrow to see if my LP results are back. Someone asked me today if I have always has glasses. I had glasses I was to wear whilst reading and I had my sight tested whenever I got a reminder through. But i had been noticing my sight was deteriorating and couldn’t read signs properly whilst driving. I had been having increasing amounts of what I thought were aura migraines without pain, which they suspect has been optic neurosis. It’s my left side that has been affected during this episode and previous symptoms (which I put down to other things) and it’s my left eye which is a lot worse than the right. I was given new glasses in November ish last year to wear all the time. Don’t mind me. Just thinking aloud. My husband is being very supportive. A lot more than I thought he would, if I’m honest.