my GP told me 6 weeks ago that it’s likely to be MS. At the time, I was just happy it’s not a brain tumor or aneurism and I’ve managed to stay positive. But today, 3 weeks from my neuro appointment, I can’t seem to stop crying. I’m only 29, I’m already having difficulty walking, what if I end up in a wheelchair? I’m only just starting my career and have put that above all other goals… now that’s on hold.
At the moment, it doesn’t even seem to matter whether I have MS or not as I don’t even know if I’ll be eligible for treatment or not… my GP certainly seems at a loss. And MS is such a stupid disease anyway with little certainty in diagnosis, a billion symptoms and a bit of a ladida- let’s wait and see approach by the medical profession (at least that’s my impression).
My sister, who has auto-immune-hepatitis, compared the whole process of getting diagnosed to waiting for the messiah: running from appointment to appointment, specialist to specialist, getting test after test and waiting for something to happen: a diagnosis, medication that solves something, anything. Only that the messiah never comes…
Apologies for not making much sense, I just really needed to vent.