Hi, I’m new here so sorry if I waffle on a bit but I’d really like to talk to people that are going through something similar to me rather than nagging at friends and family that just don’t understand!
I am waiting for an MRI which is exactly 2 weeks today and a neurologist appointment 3 weeks today which can’t come soon enough!
The reason for this is the 2 separate doctors I’ve seen are almost certain my symptoms are MS.
It all started 4 weeks ago when I woke up with u numb finger, as I was looking after my grandson at the time I didn’t really have time to think about it, it was only the next day when it was still like it and my middle finger and thumb tips had gone too that I started to worry. I Googled it and decided I had carpal tunnel and would go to see my GP on Monday morning (this was over a weekend).
On Sunday evening my right thigh joined in, feeling rubbery and almost wet and by the time I saw my GP it was my smallest 2 toes on my right foot.
This doctor said he’d send me for an MRI to rule out MS.
Over the following week more and more of my hand and leg went numb and /or pins and needles. My hand and foot going from freezing cold to burning up, feeling like they are much larger than they actually are and like they are being pulled tightly.
I remember at one point saying that if my foot would just get bearable I could cope with my hand, how wrong was I, my hand is now that bad that I manage to ignore my foot!
I went back and saw a different GP after Easter who was adamant it is MS especially as he reminded me that last June I saw them because i woke up with blurred vision that went on to last several months. At the time it was just put down to the fact I had an eye injury 20 years ago which has made my eyesight bad, (acute iritis and herpes eating away at scar tissue!) and that the other eye was worn out from doing all the work, looking back that blurry vision has now gone!
At the moment I just feel in limbo, waiting for a diagnosis, feeling like a burden especially at work as I am struggling but have no diagnosis yet.
Over the last week even more of my right side has become numb or tingly (although I think the word tingly doesn’t do it justice, making it sound like a tickle- in some places it is so painful) now it is my whole leg and foot, ( and bum cheek!!) my whole arm and hand and the right side of my torso. A tiny part of my face around my eye socket also feels different to the other one, I have also noticed my eye weeping a lot because of this too.
Do these symptoms/ feelings ring true with anyone? I’d really like to hear your stories to know I’m not alone and maybe gain some hope that they’re not permanent!
I’d also just like to chat with people going through the same thing