It’s been three months since I stopped taking Amantadine. Initially I began to sleep better and more regularly. And I still do. Of course the fatigue never goes away. I feel it’s nothing to do with sleep and more to do with our poor frazzled brains. The brain fog has taken a bit more of a hold but I just need to think a little more slowly.
Overall, I think it was a good move. My blood pressure is significantly down even though I haven’t changed the medication for that.
On a completely different subject, I have written a shortish blog about taking holidays in term time. It’s nothing to do with MS but a lot of us have a healthy interest in education:
After reading your blog I don’t think you need worry about a frazzled brain
I believe overall attendance should be considered, a blanket ban on a holiday being taken during term time was never going to work. We only hear about a small percentage of instances there are many many more who take their children away and give sickness as a reason.
Hi Steve, Very good to hear that things have improved a bit after coming off Amantadine. As I’ve said before, I don’t think it’s a good drug esp for PPMS. Having a chronic illness and taking something that is basically speed can’t be a good thing. However, saying that, I don’t have children to care for and don’t work so I’m sure for some people it’s a lifesaver.
Good blog. Agree with Jan…your brain is obviously functioning very well.
This is a big problem for me… School holidays. When ours were all still at home we always took them out of school usually within the last week or so. Having quite a few children and some of them affected by Autism meant that we had to pick very carefully where we took them. We had many happy holidays at Centre-parcs which is ideal for children with Autism, its a safe environment …no cars, nice people ect…but it comes at a price, which we could only afford in term time. We’ve always encouraged our children to work hard and be respectful at school…but we always believed that time spent together as a family was important and still feel that today, unfortunately now the law has changed it much harder to afford that holiday…we still make sure that we go away once every year but its getting harder to afford especially as all the prices go up in the school holidays. Interestingly we recently asked if our girls could have half a day off to travel to Glasgow for my sons Wedding, i explained the difficulties …me being in a wheelchair and Molly having Autism, it was going to help us to travel in the day rather than a Friday night. Molly’s school were brilliant and let her have the Friday off, but my other daughters school said no, if she took it off it would be unauthorised. I wouldn’t mind but she’d just won an award at school for working hard and being a good example… So much for being a Young Carer ! They had only recently the young carers group in to speak at the school. That was the high school in Helsby , you probably remember it Steve.
I know what you mean about the brain Fog , my brain feels soo tired and wobbly… .as my Dad always said its full of… Jolly Robins!
Please excuse lack of punctuation, spelling mistakes ect…Brain Fog!