We do seem to have a lot in common don't we! Don't worry about the questions I totally understand - it's such a stressful and confusing time.
I'm back on the sick again. I tried the full morning, again not teaching and I only lasted a couple of hours. I went to my GP and he signed me off for 8 weeks.
I'm not sure how independent schools work but we're entitled to 100 working days on full pay and 100 working days on half pay. My full pay is due to run out this week. My phased return was planned to take place between half term and Christmas with me hopefully back up to full time in the New Year. I was told that as my phased return was due to start before my full pay ran out that I would continue on full pay. If I had been on half pay I would have been paid half pay plus and hours that I worked. I'm surprised that the NUT have said your arrangement is ok but maybe it's independent school rules???
I've been off since the beginning of May and was diagnosed with PPMS at the end of September. Fatigue has been a problem since Easter - I can only walk for 10-15 minutes before I'm shattered. I do try and go out each day with someone to try and walk for 20 minutes in order to keep things moving. I break tasks up at home and do something for 10 minutes and then rest for an hour or so! We take my wheelchair with us if we're going to be out for longer.Concentrating is hard too, I did some paperwork for school and it really took it out of me. I find that hard to accept, I can understand fatigue being exercise related but not sitting fiddling about with bits of paper!!
I've been on Modafinil for 10 days now, yesterday was quite good but other days I've been quite sleepy in the afternoon so time will tell if it works. My GP has said to me that even if it works it will probably only give me an extra 10%, so still not enough to teach!
I was referred to Occ Health by the council's HR department. It's HR's policy that anyone who has been on longterm sick has an asessment before returning to work. He's been great and what we're doing at the moment is giving it time to see if the meds take effect. I've only been teaching since 2001 so my pension pot isn't very big. School used to be hugely important to me but the diagnosis has made me look at my life and reconsider. If I was working then I feel my quality of life at home would be poor so I have adjusted to the idea of medical retirement. We still have hoops to jump through (metaphorically of course!!!) but I don't think it will be that long before we're filling in those forms.
Have you claimed for DLA? The forms a nightmare to fill in but worth it. Join Benefits and Work online who will give you lots of advice in how to complete the forms. I was awarded higher rate mobility and middle rate care without a medical which will make finances a bit easier.
Take care, both of you. If I haven't answered something or you've got any further questions then just ask.