Really struggling with my lhermittes tonight. Its all through my body. Any suggestions how to get it to lessen at all. Lying down or standing is no different. Thanks x
Just a thought also, being so new to this. This has got a lot worse suddenly. My relapse started at the end of May so is this going to be part of the same relapse or could it be another one ? I’m a bit scared.
I’d give my MS nurse a call.
Hey Janetv,
This happened to me, started with tingling legs for a few weeks then lhermittes appeared. It took some time but eventually it all faded away. Hope you are ok this morning,
Sennen x
I would say lhermities is a symptom following a relapse, not a new relapse, in my case one that has stayed with me, although it has lessened with time.
Strangely mine kept me awake half the night too - must of been something in the air!
Thanks guys. I will get hold of my ms nurse but she’s not working til Tuesday. I just felt so bad last night that I hoped someone else might have some nuggets of wisdom for me.
It’s settled down a bit today, though the tremors have kicked instead. That’s a new symptom for me.
x
my kermits came when flexing my head forward (ie. chin to chest motion)
consequently, the best guarantee to gain relief, was to indulge the opposite motion, by tilting my head back.
i understand it is caused due to a lesion on the spine. as you move your head back and forth and round and around, your spinal cord moves up and down within the spine. this can create a bit of friction / irritation and thus the kermits manifest.
mine lasted a few weeks and i am grateful to be able to say that they were more a curiosity than a pain. they do not last forever and quickly begin to improve. the only aid is a neck brace / whip lash collar, to try to inhibit motion and thus discomfort. beyond that, i guess anti-inflams might help?