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L'hermittes

Hi, I posted this on everyday living, but on somebody elses post , but I need advice really and as I’m undiagnosed, its probably more appropriate here.

The last few days I get an intense shock like feeling down my spine into my left arm, both legs, though left is worse, into my heal, and then it seems to shoot back up my left leg. Its really quick, it literrally feels like someones charging me with electricity! I feel like one of those cartoon characters buzzing and sparking for a couple of seconds! But what I also wanted to ask, does anyone know if it can affect your bladder? I’ve wet myself a couple of times with it, but wondered if that’s just coincidence? I’ve got problems below the waist in general at the moment :frowning: (stiff, buzzy legs and feet that feel 3 sizes too big!) but now also fizzing left arm, and pain in my back/ribs/chest. I’m not yet diagnosed, my last scan showed lesions and a cyst, I’ve got a scan with contrast end of June, a load of blood tests later this week. My GP’s on holiday. Should I inform my neurologist, or just wait and see? Any advice greatly appreciated!

Hi Hunny,

I wouldn’t have thought it’s directly connected, myself, but if your bladder control is a bit weak anyway, maybe it’s just the sudden shock of the sensation that causes you to have an accident?

I doubt reporting this symptom, by itself, will do anything to speed up the diagnostic process, as you will still need the bloods and MRI with contrast anyway. As they’re not months away, but in the next couple of weeks already, I think it’s unlikely that reporting a new symptom will bring things forward at all.

I think you should certainly mention it to the neuro when you see him, but whether you will gain anything by mentioning it in the meantime, when appropriate tests are already imminent, is debateable.

If your doctor weren’t on holiday, I would think they might be a better person to tell.

Can it wait until next week, or is it happening really a lot? (The wetting, I mean - not just the L’hermitte’s).

Tina

Hi Tina

Thanks for your reply. I’ve got an appointment to see a different GP later in the week now, so will mention it to him. I’m never sure what should or shouldn’t be reported, and I’ve no idea when I’m seeing the neuro again yet. I didn’t think the two were usually connected, I have the occassional ‘accident’, and I guess its just coincidental. Pretty horrible sensation though, I just feel like its adding insult to injury at the mo!

Thanks again

Hi again,

I think it’s good to get these things on record, but whether it affects what they’ll do about it, or how soon, is another matter.

I wouldn’t have thought this symptom casts a dramatic new light on things - just another to add to the list.

But if it got very frequent/bad you might need referral to a continence nurse. This wouldn’t get you any closer to knowing what’s causing it, but at least you’d get help with managing the practical side.

Tina

x

Hi Sami, I’m not diagnosed yet, but I know what you mean about the cat thing! Its hard to describe, buzzing, fizzing, vibration, but no outward signs of it? I don’t think we are alone, I’ve read other posts where its been mentioned, and I too have the weird leg/bladder connection, and my problems are mainly left side, though at the moment I just feel like everything’s packing up and I just want to take to my bed and howl! Not an option however. Probably just as well! The punch in the ribs is probably the lovingly termed ‘ms hug’, which can affect just one side so I’ve been told, as I too have that delight at the moment. I hope you start feeling better soon xx

Tina, thanks again. Its all a worry, and I really hate bothering the GP, as you rightly say, it won’t bring diagnosis any closer, and they are so busy, but I feel that someone, somewhere should know, and I haven’t got a clue about who needs to know what and when! x

Hello - my buzzing/fizzing is driving me nuts at the moment too. Along with the burning and prickling and twitching. I also have a direct connection with legs and bladder being bad at the same time. I don’t think I get l’Hermittes as I don’t get a shock-like sensation when bending my head but I do get a burning type pain between my shoulder blades and my left arm feels cut-off. I don’t get the ms hug either but am getting pains in my ribs. I just wish I could find out why I’m having all this.

Very difficult to know what to do when it all gets worse (I’m pretty bad these last few days) - I think we’re just left to deal with it anyway so I don’t report anything.

We can all hold hands together at least. Hugs to you all.

Dx

[quote=“hunny”]

The last few days I get an intense shock like feeling down my spine into my left arm, both legs, though left is worse, into my heal, and then it seems to shoot back up my left leg. Its really quick, it literrally feels like someones charging me with electricity! I feel like one of those cartoon characters buzzing and sparking for a couple of seconds! But what I also wanted to ask, does anyone know if it can affect your bladder? I’ve wet myself a couple of times with it, but wondered if that’s just coincidence? I’ve got problems below the waist in general at the moment :frowning: (stiff, buzzy legs and feet that feel 3 sizes too big!) but now also fizzing left arm, and pain in my back/ribs/chest. [/quote]

Hi Hunny - in a word - YES!!

I get similar up & down my spine into my legs. I also get it where it feels like I’ve touched a nerve in my spine & it shoots round my abdomen - it’s so bad my whole body shoots up!!..and I’ve lost control of my bladder twice when it’s happened - once while I was delivering a training session!!!xxxjenxxx

PS I’m still undiagnosed and with this particular symptom the docs thought initially that my disc had prolapsed (I had an RTA 16yrs ago)

But after seeing the neurospinal consultant last November he said he believes it’s a lesion in the spine - he was the first one to mention a demyelating disease & set me on the MS route.

The neurologist I saw last month also said he thinks it’s lesions in the spine that cause this particular set of symptoms and the brisk reflexes with clonus & positive Babinski test backs it up xxxjenxxx