Hi Everyone and happy new year!
I hope you are better off then me. Just return from Xmas break at my mum’s place in Europe and 2 days later as I wan not feeling well decided to do covid test - positive.
I do not want to point fingers on any of my family over there, but now I’m rather anxious.
I tend to get a flare up / pseudo-relapse after most of the colds or flu I unwillingly acquire but this time I’m really worried.
I’m having some of the general symptoms, higher temperature on and off, bit of headache on and off, sore throat, block or runny nose and now even cough.
I’ve been taking all those Max Cold and Flu tablets containing paracetamol, drinking herbal teas for upper respiratory truck and another for lungs trouble and bronchitis, inhaling salty water, Wicks on chest and neck,…you name it, but it does not make me feel any more easier to how my MS will take the exhaustion of my body by covid in a few days, week or two.
This is my first time I have a covid and I’m very aware that people like us do suffer with MS flare ups after with even a month in recovery.
I am fully vaccinated with anything and everything I can have but it still keeps me on the edge.
Do take care of yourself
Best regards
You probably know this already, but anti viral treatment is available for us high risk types.
[Treatments for COVID-19 - NHS (www.nhs.uk)](Treatments for COVID-19 - NHS
NHS changes how to access COVID-19 anti-virals (substack.com)
Oh, I did not know about that. I wonder if they have it in Japan too.
On topic, that sure sounds awful Gemini, I hope you’ll be alright!
To be honest it’s one of the main reasons I have stayed away from my family home in Denmark the last few Christmases and just celebrated with my wife in Japan, as lonely as it is. They batter me with contempt for my concerns all the time, saying Covid is no big deal, and indeed MS is no big deal [for most people], and that I have to live my life and not stay away all the time and by the way do more muscle training etc. All the while randomly being bedridden for days themselves by all the usual infections and never moving away from the sofa on regular days. Urgh. Sorry, unrelated rant.
It sounds like you’ve done all you can so it’s all down to waiting it out now I imagine, I sure hope you’ll be okay. Don’t overdo it and keep up your spirits!
Feel free to let us know how it’s going, but it’s also important not to sit at the PC or phone too much and instead get proper rest so don’t worry about it and just barricade yourself in recovery mode. I’m sure you’ll be alright. Have a little hot chocolate to cheer up perhaps, a good mood is also a wonderful little helper drug for many ailments.
Hi Gemini. Got Covid over two years ago. I and my wife both got quite bad cases - I think because for 3 days we were in the close company of someone with a cough which, she said wasn’t Covid but then found out it was. So for three days we kept getting infected.
My experience of Covid: it really tired me out and took some 6 months or more to recover to something like normal. My advice is take it easy and don’t push yourself.
In the first 48 hours or so my MS symptoms were far worse - basically I couldn’t walk- but slowly recovered although to me / in my mind they have never recovered to pre-Covid levels. I dont think I had a relapse as such - in so far as no new symptoms- but everything got that bit worse.
I got the antivirals as soon as I could. No idea if they made a significant difference but better safe than sorry!
I hope all goes as well as can be for you.
Hi guys
Thank you for your messages and well wishes.
I’ve tried to call my GP on Monday (08/01) as I’ve tested positive to see if I could get the antiviral drugs. Instead, I’ve been told that all the appointments for the day have been taken even though I’ve told the receptionist that I’ve got MS and eligible to the treatment, but I’ve been fobbed off to speak to a pharmacist. The pharmacist asked me what my symptoms are, made a note and told me to take paracetamol and call them back if I get any worse and fogged me off as well.
By Wednesday evening, my MS symptoms start creeping in, even though I’ve expected them bit later, sort of this week. I managed to get hold of my MS Nurse on Thursday, who could not believe that I was not able to discuss my treatment and advised me to call 111 (UK) directly next time, should I get covid as they would sort it for me as by this time it was already too late for her to get it sorted fort it for me.
The treatment must be administered very early on, the day 1 – 3 when tested positive. On more positive note, my nurse told me that it will give body opportunity to workout some resistance for future infection and what I’ve been reading, treatment or not, if MS decides to flare up, the covid treatment does not have any impact.
It’s really annoying, all my family is fine so I could only think, that I caught the virus in transit from my mum’s in EU to my home in UK. I have been wearing a face mask apart going for a breakfast in the morning in the hotel as my flight did not get back till 1 am so overnight accommodation wasn’t optional but necessity as there are no trains by then and I’d like to take it easy on the way out of and into the country.
I’ve got only one mum, and she’s getting very old with many medical issues herself, so I just have to make myself ready for next Xmas to be with her and hope for the best.
I just put down it the season, winter, full of nasty bugs around.
Wishing you and your families all the best
That’s a poor effort from your HCPs in the antivirals front. They did a better job around here on the two occasions I have had Covid and needed them - I now see how lucky I have been. I guess it just depends on whether someone competent and energetic locally has taken the task by the scruff of the neck and set arrangements in place properly and made sure HCPs know what their responsibilities are. Get well soon, anyway.