Hi All
Recently diagnosed with RRMS and wondering where people draw on support and information??
Besides a brief meeting with a consultant, I haven’t had any information or support to understand my condition or whether symptoms I am experiencing now are due to MS or something else. My GP advised she does not have the specialist knowledge to advise me or to prescribe medication which may help me. I am awaiting an appointment with an MS nurse to discuss medication but in the meantime, have no reference point to discuss things with people who may be able to answer my questions!! Are there any friendly and supportive, MS specific forums / discussion boards out there where my post will actually be posted, rather than withheld by moderators? It would be useful to know if other people with RRMS can relate to some of the difficulties I am having myself but it would appear I am not allowed to ask that in some groups?!
Thanks for listening…
This main part of this MS Soc site (or which which Forum is part) is great for good information about MS and how to manage it.
This forum has been a great support to me over the years. Ask whatever you like on here - it is a good, supportive space to ask question and let off some steam if you need to. There’s always someone on here who has felt something similar and we are all in the same boat.
One thing - please let me reassure you that there is no secret source of knowledge about MS that would answer all your questions if only you could find it. So don’t worry - you aren’t missing something important. Most of the questions I wanted answered when I was newly dx were unanswerable. Most of the questions I want answered 16 years on are unanswerable still. That is the nature of the MS beast, I’m afraid. But most of us make good lives for ourselves despite all the uncertainties and imponderables.
Good luck with it all.
Alison
Hi Tortielicious
It was this very forum that I turned to throughout the diagnostics, and when I was diagnosed with MS six months later. There’s always someone around who can offer a few words of support and point us in the right direction, because, as Alison says, we’re all in the same boat.
Everyone with MS has a different story to tell, and what affects one may not affect another, but over time we each learn our own limitations - in that respect it’s a big learning curve for us all.
Both the MS Society and the MS Trust are excellent sources for reliable information, and both do a range of helpful booklets which can be read online, downloaded, or ordered to be delivered by post - definitely worth looking at!
Good luck!
1 Like
Hi tortielicious,
I totally agree with you. I think except few forums and online info, you feel alone and abounded with something overwhelming. The NHS wait times doesn’t contribute and seems as endless wait. I have started on a project but it its very early days, so till then i suspect you can find some support here. I personally have survived this time purely with my friend with ms to give me strength and advise like 24/7 
If you wish, you can always drop me a line.
Take care and be positive,
Sandra