I was diagnosed last may,first had symptoms in may 2014,i saw a neurologist last september he stated he would refer me to a colleague,i never received an appointment,i saw him again in march have now received an appt for August,since a bad cold i had 2 months ago i have suffered a tightness in my left hand side,last week i had surgery for a benign tumour in my head,i’m terrified ms symptoms will only get worse following surgery,went to gp who was to put it mildly useless,was offered diazepam 2mg and a ibuprofen,I’m desperate for urgent treatment what do i do?.
Sorry to hear you’re having such a hard time.
Do you have an ms nurse? If not you can locate your nearest one on this website under the ‘near me’ section and give them a call yourself. I agree you need some help so think this will be the best way, as tou say gp’s aren’t great at ms.
Hope you get something sorted soon.
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Some suggestions:
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try to see a different GP, most practices have more than one
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phone your neurologists’ secretary and see if you can get your appointment brought forward
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also, ask your neuros secretary what happened about the referral to someone else? (Find out who that was and if the referral ever got made, if so, phone their secretary)
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as ssdd said, contact your MS nurse if you have one, if you don’t, is there a general neurology nurse who you can contact?
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if you are having real pain and feel your need is truly urgent, phone 111 or go to A&E
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speak to the secretary of whoever did your surgery last week for advice
All the best.
Sue
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