I feel really stupid but in the middle of making tonights tea I got myself sooooooo upset because my left hand just wouldn’t do what I wanted it to. I was dropping things, couldn’t grip, it was just really clumsy.
I eventually lost it when I couldn’t open a simple packet of noodles. I launched them at the wall (with my good hand), screamed and then just burst into tears. My partner didn’t know what was wrong or what to do. He must think I’m mad. He can’t really appreciate why it bothers me so much because he’s never experienced it himself.
I’m completely frustrated with all my symptoms at the moment and this just pushed me over the edge. It doesn’t help that I’m still sitting in limbo land waiting for a neuro appointment because our local NHS hospital has a waiting list of over 12 weeks!!!
No better place to rant about a dodgy hand than here
If your partner doesn’t get it, why not get him to wear a glove on one hand for the whole day? It’s not the same, but it might open his eyes a wee bit.
Oh I do sympathize with you, I’m always dropping things, breaking things, but having got used to it I just laugh and go Whoops, and hubby says what is it this time? It does everyone good to have a rant, in fact I had one myself today, I’d been out with hubby using my rollator got back home, fell into a chair and said I’m bl**dy fed up with this and to make myself better I repeated it about four times. Hubby just stood there, listened and said have you finished now, yep I said feel much better. Got up and had some lunch. It’s quite normal to have a rant and here is the best place to do just that as we all understand. Limboland is not a good place to be so try to hang in there, we’re here if you need to talk. Take care and hope you feel better and get the answers soon.
Bless … You are not alone. I am always ranting. You should have been in my house last Sunday when I dropped a full bottle of garlic olive oil it stank and I was so cross I wouldn’t let anyone help. Think the kids and my husband looked at my like I had lost my mind. Just remember you we’re probably fiery before ms. I was and it is that fiery spirit that will get you through. Better to have some fight in you. Heard the best phrase the other day. I may have ms but ms does not have me There is nothing wrong with a good rant xxxxxx shout if you want to rant more than welcome xxxxxx Love to u xxxx
Morning Anon x please don’t feel bad about getting upset xxxxx
I have had my leg totally refusing to cooperate for a while - and been somewhat clumsy with things - but then a few weeks ago my hand suddenly upped it a level and totally joined the ‘party’!
I simply tried to light my candle and I just could not strike the lighter - no matter how much I tried! Then I realised that I couldnt write anymore - it was like my hand was not connected to my brain! It was so distressing - probably the worst thing for me as I’m an artist x
I’ve been really upset about it - it has really scared me - I can just about cope with my legs performing etc - but to lose the ability to do something as natural as writing is something else! I was distraught and my poor hubby just didn’t know what to do with me!
It’s improved somewhat over the weeks but I now have the writing skills of a 3 year old and I’m also dropping things and flinging things around a heck of a lot more.
It’s all just so horrible Anon and like you say other people just don’t know how awful and frustrating it is unless they’ve experienced it x so go easy on yourself, be kind to yourself & let yourself rant and cry whenever the urge takes you xxxx
Oh it is soo frustrating at times but hopefully given time things will improve. I lost the use of my right hand in march. I couldn’t move my fingers, write or do anything with it really. For me things improved slowly and have still not fully recovered but even now I am hopeful things will continue to improve. This month, I have noticed that after about eight months, my writing has improved and my speed of writing to! I guess what I am saying is stay positive if you can…and try to make sure you haven’t cooked the noodles first, if it drives you bonkers again! Keep smiling : ) Mish x
