sorry I need to vent. Just saw my neuro this morning. I was calm collected and when he asked me whats been happening I'd written a list of main symptoms not to overwhelm him. I started with the worst - the pain to which he then said well I get pain you just need to ignore it and stretch etc etc I do YOGA to stretch I take 5 mins out every half hour at work to stretch!
Then he started going off on tangent so I said but I also have bowel and bladder problems (next on my list). He then said well I can put you on amytriptiline or other nasty stuff but do you want to take it - i said not if I can get away without but I'd like to know my options! He then said I think you're a pessimist you just need to ignore your symptoms becuase they're mild and get on with things. How dare he calls me a pessimist! I know my symptoms are relatively mild but its quiet difficult becasue they vary so much - its not fun being in agony, then thinking you're going to pee yourself or then having to go to the loo 5 times in the space of a few hours. I'm trying to help myself so despite the fact I can't run I dance and do yoga and haven't had time off because of this. I constantly think I'm lucky that things aren't any worse, don't really tell my friends about my symtpoms, try and battle through tiredness and fatigue without complaining, I haven't even told my parents in the hope it'll go away - how the hell am I pesimistic!
I then said well what has caused all this - he said well you have had an epsiode of 'inflammation' but we don't know what will happen yet we just need to monitor. I asked about LP's and EVP's because he had offered it last time but said he didn't think I needed, today he said it wouldn't make the diagnosis. He said it wouldn't make me want to put you on treatment. I said well what is the plan then - he said I've seen plenty of patients with your scans and most don't develop anything more but lets repeat your MRI's in a couple of months and have a review in a year to see what's happening and if things are changing, but if things get worse you can call or email me.
Grrr I'm just frustrated - I'm glad he's repeating my MRI to see if there are anymore lesions but his attitude stinks. I'm sorry I work in healthcare so i completely understand about the waiting process - horrible though it is. But telling someone you're a pessimist and just ignore your symptoms and not even wanting to listen to them is not good. How does he know how I feel - is he getting the symptoms?
So annoyed I feel like crying - but I won't. So basically I've had a clinically isolated episode - we wait and watch.