On Thursday I see my Neuro for the fourth time in 7 months the next day I see a Neurosurgeon as two of my discs are compressed too, next week I see a haemotologist, as there is some antibodies in my blood too, on the 28th I see my urologist for the first time and then the next day i see an Opthamlogist for uveitis…then my neuro is referring me to a neuro who specialises in MS, currently I’m being treated for epilepsy and probable MS, have had three MRI’s now, first one lesions multiple on brain, spine MRI clear third on brain still to find out, lumbar ok, ECG ok but he says he thinks it probably is MS but further tests.
numbness started three years ago …right hip, knee joint, arm, the hip numbness has now spread to my right bum cheek and is starting to travel over the right side of my tummy
Bladder…feels full and when I go it’s a trickle…been screaming that I’m about to pee myself and when I get there a little trickle
Bowels…again sorry to be squeamish but sometimes both at once
Eyes…have a black spot on right eye and eye sight…can’t see when take glasses off
Heat, my husband and I always had a constant battle with the heating, he opened windows and I shut them, now I wake up because the heating is on and can’t tolerate it…but my right foot and right side of my body is cold
Walking…I was always a power walker with my kids saying slow down, now I sort of manage to get one foot in front of each other
Dizziness/Vertigo…this is one of the worst…constantly feeling like I’m about to fall down
Fuzzy heavy head…I can only describe it as my head feels like a bowling ball on my neck, some days even turning round, I am sure it will snap…I hate bowling head days…along with the fog
standing…have to hang onto things especially in queues
Memory, long term I can remember things, short term is terrible
Eye tics…again only on right side
Periods…May then December twice
Vitamin D and Folic acid, none, three month course cause had none
noise…if too much is happening I can’t hear, ie tv, kids talking, phone calls etc
i know some of you may say not all is MS related until June I had never thought anything about MS it was my GP and Neuro who mentioned it I’ve been told it’s not vascular and probable MS, which type I do not know but my Neuro is hard to understand …
but i have had the best dr doing the best tests, it’s not Lyme disease, it’s not vasculitus or fibromyalgia… Hopefully by the end of this week i might know more…should I write down questions this time and this time not leave without the answers, the fact that he’s referring me to an ms neuro does this definitely mean it’s MS at the moment he said probable.
I have always been active, banker, estate agent, lawyer, worked since 16, now 45, now doing volunteer classroom assistant, thinking of doing training is that a good idea, or should I learn to cope with this first.
Thanks not been on and posted too many times but read threads, feel for everyone on this forum…everyone is different, many thanks for any responses xxx