I’ve had MS for over 30 years and have only managed to see a Neurologist 5 or 6 times!
I was offered an appointment back in February 2023 which was then moved to July, then it was brought forward to June then moved back to July. This morning the Hospital have informed me that it has now been rescheduled to August that’s the 5th move!!
Will I ever see a Neurologist again and is this happening to other MS patients??
Unfortunately my mobility is pretty dire these days & I struggle to walk.
My MS Nurse thinks the Neurologist could possibly help with deal with the pain I am in at the moment.
Hi Sue, Well I don’t know what part of the country you are in, I’m in West Yorkshire and have recently found out that the neurologist here retired in December, as did his assistant neuro, now we’re having to share 1 neuro between 2 hospital’s , shocking really, so here in Huddersfield it’s not surprising when I hear that folk are having to wait, which is awful, we’ve a friend that last December was dx’d with Parkinson’s and still hasn’t seen anyone I really hope you’re not waiting too much longer.
Sorry to hear this. I have been RRMS for the past 20 years or so but have recently lost a lot of my mobility in my right leg and also have drop foot.
I was recently re-diagnosed as SPMS Secondary Progressive MS
I’ve had a physio assessment and an MRI scan where they notice new scarring on my spine.
I am lucky that I am getting to try out F.E.S. soon. Functional Electronic that help with the movemen Stimulus.
This is something you should ask about. They stick pads to your calf and they send electrical impulses to the muscle
Perhaps you’ve heard of FES? If not I would Google it
Oh I haven’t heard of FES but I will Google it. Thanks for the suggestion!
I’m also doing some stretching exercises which seems to help
with the aches and pain! It’s really difficult to keep positive with this flipping MS but trying different things helps a bit!
Hi I’m new here, for about four years I’ve been tested for everything. My uncle ended in the hospital for over a week ago. My mom now tells me her brother has MS. I made a appointment with my Dr, why would you think you have MS. Told him about my uncle, he went to check medical books. He came back and told me I have to have a MRI of my brain. I can’t message on all the symptoms I’ve been having. I hate the shakiness and the constant jerking off my hands, and taking longer to write something. I’m having hard times of remembering the things I’ve known for yrs. Even people I knew since baby, I see the faces but can’t remember names.feb 18th I ended in hospital I couldn’t walk, my body had a mind of its own couldn’t sit felt someone was on my chest. I ended up dying, they got me back before brain damage. Pnuemnia on top of the flu then sepsis, I was in for a week. Nurses would bring me food, I would be drinking something I ended up with hot coffee all over me and floor, ever since then I’ve been getting worse. People will talk to me, I would hear but can’t register what their truly saying then not being able to talk or say what their asking. I can’t get MRI until the first. I know I have it, I can’t see a neurologist till my birth month July. What do they all do for you anyway. When you get on meds does your memory come back, or am I stuck this way. I can barely walk downstairs. From my neck shoulders knees feet are all stiff. Or I walk up and my hands feet are numb. Or in pain won’t ease up till I sit up. Someone gave me a old hospital bed, because the office in hospital said I couldn’t get one because I wasn’t basically dying. I’m so nervous and scared, Dr put me on a form of an anxiety med. Jerks calmed down but today I pushed my self to much now my hands are jerky and my body is Shakey. I end up in panic attacks to where I can’t breath now. But my body is easing up. Is it normal to have so many symptoms? Two four yrs we’ve been searching beginning it was here n there, I would end up with upset stomach, to where I was puking from nausea. But now I have answer, but what’s in store for me, if symptoms keep getting worse. OMG when the house is too warm feels like my skin is burning. The muscles feeling like there’s a fire in them. I can’t be in car to long, and being in the sun. Feels like my skin is literally burning, I’m suppose to get in sun I have low vitamin d. I’m on oyster and vitamin d vitamins. I had my first broken bone like four yrs ago and I’m turning 42 in July. I have way to many symptoms to say no it’s not this. I’m sorry for typing so much, but I’m happy to find this, to actually talk to thers about this… But one question what can I do, to find proper shoes. I have a leg longer then the other, I get ALOT of pain because one leg is holding my weight so in morning I have alot of pain walking downstairs ? If anyone have their tounge severely swell from this. I’m still shocked how bad the legs and feet can swell so much. I’m from the upper Pennisula in Michigan below Canada.
I really hope you’re not waiting too much longer.
