I’ve not been having such a great time of it of late, starting with lightheadedness and my right leg going numb on and off about 7-8 weeks ago (lasting about 2 weeks, short episodes on and off). The about 3-4 weeks ago I started with double vision. About 1-2 weeks ago, on top of the double vision, I’ve now started to get headaches and really quite nasty nausea. This is as well as episodes of fatigue. I finally saw the neuro again last week, who basically didn’t do anything except say yep it’s definately MS - inflammation of the brain stem (was only diagnosised about 3-4 weeks before - only symptom until then was optic neuritis, and I had reported some vertigo but my neuro had been dismissive of it until this visit). Hmmm… thanks for that genius. After I pushed him he gave me a script that I could take to my docs for anti-nausea meds, and one for a weeks time if the double vision hadn’t cleared up for a short course of steroids. He has finally referred me to the MS team (I asked when I was previously there in June, but he said there’d be no need - lol!), so hopefully I’ll get an appointment with a neurologist who actually knows what they’re talking about soon and with the MS nurse, and I’ll be able to sort out going on to meds to slow down relapses.
I’m also a nursing student, and am just finishing my placement. But it’s been so so hard to even so much as get up and go in some days, let alone keep going - I’ve just felt so ill I thought I was going to collapse. And my neuro seemed to be pretty dismissive of this as well. Nor are the uni supportive. It’s difficult, because I don’t really know what would be reasonable adjustments to ask of them + I don’t want to make a big fuss because of employability after uni (whch they’ve already mentioned), and incase they say I’m not fit for the course anymore (which they’re beginning to try and hint at). My tutor said to me why don’t I take a year out and get my health sorted then come back after that (like MS is something that goes away).
I’m just feeling pretty fobbed off and very isolated / out on a limb at the moment. I feel like I don’t really know what kind of prognosis I’ve got, nor anything about the type of MS I have, nor how long it’ll be until my eyes go right (given it’s been 4 weeks already) if at all and what it’ll mean long term if they don’t, nor what support is out there for me if I can’t complete my nursing course / practice as a nurse (as my family isn’t very supportive - they have a lot of mental health problems and can’t really cope with it so I don’t know where to go with it really).
Anybody know of any support groups or anything in the Southampton area, or can offer any advice for me please?