Looks like I’ve ended up here after all! Since summer 2015, I have been repeatedly visiting multiple GPs, eye specialists and neurologists insisting that I have MS. The general consensus was that I definitely didn’t have MS, rather it was some sort of pinched nerve type thing and/or anxiety. I was absolutely insistent on getting an MRI scan, so they reluctantly gave me one. I got the news two days ago over the phone that I have inflammation on my brain and c-spine which ties in with my symptoms. The doctor has pretty much flat out told me that it’s MS, and it’ll be confirmed with a lumbar puncture in around 6 weeks.
Above all, I’m honestly just baffled that this has happened to me. I’m a 24 year old woman, in the prime of my life and happiness. I can barely sit still, I’m doing my Master’s degree and I try to cram in as many trips to the gym per week as possible. My symptoms have solely been twitching, tingling hands and feet, and a positive L’Hermittes sign (electric shocks up my body and down my arm when I bend my head forward). Despite being insistent that I might have MS…at the same time, part of me thought that it was a ridiculous notion and my tests would come back clear.
So what on earth is in store for me now? I don’t even know what kind of MS I have. Is it likely that I’m going to become tired, with visual disturbances and chronic pain? I know that everyone’s MS is different, but is there a similar pattern of events that tends to happen? And is there anything I can do to keep things as they are? I’m freaking out - I feel like I’m on borrowed time. I’ve also been given no follow up support by my doctor, so all my research has been done online.
I suppose I really want people to come forward and reassure me that this isn’t the end of the line. I have so many things to do and achieve and I didn’t ever see a debilitating, chronic illness as part of my future (I don’t suppose anyone does).
I’m also sorry for any negative vibes I might be putting across - I’m very happy to have found this society. Things are just still very raw and surreal at the moment.