I’m very new to all of this so apologise in advanced. I don’t know we I’m here, I just think I want some reassurance. I don’t want to give too much away because I don’t want anybody who knows me to know anything yet. But I’d like to share my story.
I recently had some symptoms which mimicked a stroke, numbness down one side, blurred vision, memory loss and difficulty speaking, I was taken to hospital by ambulance and admitted to the stroke department. They then gave me a CT scan and an MRI scan followed. After around a month of still feeling shocking, no energy, sleeping after very little activity and a constant headache, with around 5/6 less severe relapses of the initial incident, my GP told me that my scan had shown I have MS. I was mortified, pictured myself in a wheelchair losing control of my body and ending up being stuck in a useless body going crazy.
I then found this website and it all seemed to make sense… The numbness in my leg etc and then unrelated symptoms… I was being tested for glandular fever 6 months ago as I just have no energy at all and I’m always ill, I get water infections at least once a month and lose some control of my bladder, I suffer with IBS. I then had an image in my head that my life would actually get better, that all of my ongoing problems would be explained and I’d understand what was going on with my body.
So for around 2 weeks I was feeling positive, my symptoms still came and went but I didn’t panic, I had an answer. Then I saw my neurologist, he said that the scan showed three or four patches where some change has happened in my brain, but it isn’t severe enough to point to MS, if I had MS he said it would be much worse, but surely it could be the early signs?! He couldn’t tell me what it meant but said that he thinks I’ve just had a migraine and brushed everything off. He’s willing to do some extra scans and an eye test to see of anything shows but has basically written it off.
I feel like I’m right back at the beginning, I don’t particularly want to have MS but it gave me some kind of answer and peace of mind. The stress has made my speech shocking, I stutter constantly, cannot think of the right word, my head just seems to be working 5 seconds slower than it should be, my numbness is now coming and going more, I’m so tired, im sleeping for 15 hours each night and I’ve got a constant headache.
I don’t know what I’m expecting from this, I just can’t seem to cope at the minute, I’m spending most of my time sat crying. I need to be positive but I’m finding it so difficult.
Thank you to anyone who has read to the bottom, I appreciate you listening to my waffle,