I have joined the forum, because I am getting no answers from my GP and am starting to doubt my own mind so am hoping for some help, advice, views and whatever else I can get to prove I am not going out of my mind…
I have just been diagnosed with Fibromyalgia after 4 months off work with depression (had to reduce hours from 37 to 16 when I went back) and months of being told my illness was depression and to take paracetamol for pain.
I was grateful/relieved for a diagnosis after GPs dismissing I had anything other than depression & IBS. BUT…
When I mentioned to a colleague at work that I had been diagnosed with Fibro, he said that his sister had been misdiagnosed with that and she actually had MS.
This worried me, (although I had not considered it before) because my nan had MS. I have read a host of sites, some say it’s not genetic, some say it is, some say it’s possible?
My GP surgery is not the greatest and 2 out of 3 doctors seen have suggested my pain is psychological, hence the doubt in my mind.
I know that the symptoms of Fibro and MS can be very similar but I am experiencing symptoms of both and am not sure what to do next as I feel if I bring up my worries to GP they will just discredit my questions. (I asked a few months ago if my extreme tiredness could be contributed to diabetes as my mum had it and was told, ‘snort’ let’s not make our own diagnosis and wait for blood results’???
As I’ve learned, both illnesses can not be diagnosed with blood tests and I have an appointment at the end of the month with the sleep clinic but I am seriously going nuts trying to work out what’s wrong.
My symptoms are:
Extreme fatigue… I have been going to bed at 9.30pm and struggling to get up at 7.30am, feeling shattered throughout the day, everyday
Stiffness and cramps… It can take me upto 45 mins to get up of a morning due to pain (mostly in my ankles) I also get regular cramps (mostly in calfs) but sometimes in toes and foot
Pain… Arms, legs, hips, back, shoulders…for example, I can’t talk on the phone more than 5 mins without my arms aching. I can’t walk too far without feeling exhausted (no breathlessness just achy) Knees often buckle, Hip aches, wakes me up regularly. I can’t carry shopping, and I often have to get taxi to/from work
Dizziness… Sometimes on standing, if i look behind me whilst walking (i.e looking for bus) I feel dizzy when I turn back around and wobble
IBS… I have an urgency with bowel movements, whether diarrhoea or constipation i feel an urgency to go I regularly have accidents, both at home and out
Sensitivity… Bright daylight (not necessarily sunshine) Loud TV hurts my ears, I have a large TV but have to squint to read words due to bluriness
Vision… Not too bad apart from blurry vision as mentioned above
Periods… I have had the Mirena coil since 2000 (after the birth of my last baby) and have not had a period since then until 4 months ago…Also had an abnormal smear result and had to have a colposcopy (waiting on resutls) Bleeding is light and lasts a day, but have all the abdominal pains of a period (I am 43 by the way)
Mind… I only work 16 hours a week now (9-1 over 4 days) and yes my job is demanding/stressful, but after about an 1 1/2-2 hours my mind seems to turn to mush
Depression/anxiety…Have suffered with this for years so not sure how to relate it
Headaches…Have had many over the past few months but other pains outweigh them
Exercise… Is a nogo zone. I go food shopping once a week and am exhausted for up to 48 hours after
Numbness…Often get pin and needles in fingers and hands also get extremely cold
GP has prescribed codine and naproxen for pain and also steraline (anti-depressant). Pain does not go away, but I feel more relaxed. However, since starting these I am experiencing insomnia, dry mouth, itching and restlessness…
So anyway, after all that, I guess I am asking, is there a chance this is MS rather than Fibromyalgia? (especially as my nan had it?)
Thanks guys, sorry for the long post but wanted to get as much as I could out there.