Hi everyone,
feelin in limbo at the moment and would like to share my story so far.
10 weeks ago I went to hospital with a terrible headache (affecting right side of my head), pain in my right eye and weakness all down my right side, I had ct and 2 MRI scans, all came back clear but was told they couldn’t rule out a stroke as I could have had a small bleed somewhere in my body. After 12 days in hospital I was discharged with no medication, they had also scanned my heart and found a hole in it which I now have to go see a specialist about having it closed over. Anyway, the weakness Improved slightly but never went away, and was still getting headaches. Then 3 weeks later I went back to hospital with terrible headache and increased weakness again, kept in for 2 days and sent home with prescription of amitryptaline to take nightly. The weakness continued and walking anything more than day half a mile results in terrible pain in my right leg, my right side generally feels heavy most of the time.
On Fridayast week I started to feel really off colour, then on Sunday I ended up being blue lighted to hospitals with a headache and loss of speech, had ct scan, came back clear, but again they couldn’t rule out a tiny clot somewhere in my body. I knew what I wanted I say but the words wouldn’t come out, just the odd word every so often. Loss of speech lasted 12 hours but even today I am still slower than usual. They did blood tests and found my blood was quite thick and took lots more blood, results I will get soon. I have been referred to neurologist who I will see in around 8 weeks they said as they are thinking there’s a possibility of ms as my weakness has remained since day 1.
I fewl in total limbo, desperate for any kind of diagnosis so i can get just get my head around it xxxx
