So i finally built up courage to post as im simply so low and feel in limbo Ill try to explain as briefly as poss so bear with me please…
In July 2015 my vision and orientation became very bad ( blurred double vision, and couldnt walk in a straight line ) this got worse over a few days and i finally went to see my GP, at first they thought possible TIA / Mini stroke but then possibly labrythitis.
I was referred to a a neurologist / registrar who did some tests and felt unsure and decided on an MRI scan to try and work out what was wrong, after the MRI i returned for my results and was seen by a duty doctor ( not a neurologist ) who promptly sat there and informed me i had MS and also small vessel disease. As you can imagine this came as a massive shock and was very traumatic for me and my family.
i was then told i needed a lumbar puncture to see what level etc and a more accurate picture of what was going on, i did this and then finally got an appointment with the senior neurologist, he showed me my brain scan and then told me it was a mild brain infection / inflammations and gave me 5 days of steroids ( 500mg per day for 5 days )
As you can imagine i felt a huge weight lift and was very happy that i didnt have MS or small vessel disease and took the course of steroids expecting improvements and to get well.
This did not happen and whilst there was a small improvement iin my co ordination and vision i still did not feel right, this went on for some time before i finally decided i needed to see the neurologist again, i explained my feelings and symptoms and that nothing was improving, he decided that its almost definitely MS and to have another MRI and another course of steroids for 5 days.
Im returning for the MRI in a couple of weeks, however over the last few months i have become extremely depressed frustrated and down, i cannot focus on anything for long and have no energy or get up and go, I have been signed of sick for a long time but money is tight beyond belief and the whole thing is taking a massive toll on my well being, i went to a GP yesterday and broke down in front of him, he gave me some anti depressants which im going to try but i just feel i have no where to turn.
Im in debt and have no way out of everything and no where to turn for help ! Im sorry for voicing all of this but im hoping someone can point me in the right direction for some help or where i can go to talk