Has anyone ever had surgery performed to fix the symptoms of Internuclear Ophthalmoplegia?
I was offered the option of surgery or prisms, being told that prisms most likely would not help. I got a temporary one put on my glasses and it does help with my left eye quite a bit. The problem is I’m still getting double vision and ghosting.
Would surgery fix the symptoms of Internuclear Ophthalmoplegia? If anyone has had surgey for this condition please could you let me know if it did help please.
Thanks in advance to anyone who provide me with any relevant information to decide on whether to go for surgery or not.
Hi, ‘Anon’ - I don’t really have any ‘advice’ but I have had MS for ~13 yrs and my wife is an Opthalmologist - so I could ask her?
Marcus.
Marcus thanks for you reply mate. I would greatly appreciate any valubale information you could get from your wife on this subject. I look forward to your update.
Marcus please could you kindly let me know, if you have found out any valuable information for me.
No one’s getting notifications about posts unless they set it specifically so it might be best to send Marcus a pm? He probably isn’t seeing your posts.
Karen x
Thanks Karen will send him a message now.
Hi anon
I have just threaded yesterday about this condition i suffer with and i am scared and confused as i have no periphal vision in both eyes and struggle to see up and down and i would really like to know more about it and how it progresses as sick of falling and getting run over lucky not serious. Although i have dental sugery twice for falling.I go to Huddersfield for optalmology and they confirmed yesterday surgery would not help as i would relapse again due to the stress of surgery and the fact the lesions in both eyes are to extent and would spread. I am happy that i appear not the only one with this problem. I would like to know how to do you manage day to day and any tip’s i am only youngish early thirties.
Hazexx
Hi Baffled, I am so sorry to read about you suffering from this condition. I to used to have falls when the condition is active my left eye is the one that drifts all the way to the left. On further testing at the eye clinic they also confirmed my right eye also drifts slightly but probably goes unnoticed.
When it is active I can always fall to the left side, my balance is affected badly and if it wasn’t for the walking aid I use I’d have hurt myself on many occasions.
My INO is not permanent it can be active for a few days to a couple of weeks then everything is back to normal for me. Mine can be triggered with fatigue and getting too hot.
I would recommend getting a walking aid if you do not have one it will help with the balance and prevent falls by giving you support should you go of balance. Also if you know of any triggers then I would suggest trying to avoid them if possible.
I am also in my thirties and the thing that used to bother me the most was the balance, shadows and double vision. The prism has not helped much it only prevents the eye from drifiting a lot more than it used to. I find the condition embarrassing when it’s active so wear really dark prescription glasses so that people may not notice it.
I am no expert in the condition and would wait for Marcus1 to get back to us with more information.
I was curious as to whether you have been diagnosed with “ms” or not, if you have been diagnosed with “ms” then the “ms” needs treating as it is the main cause of the condition in young adults.
I have also replied to your private message and if you feel there might be anything related to this condition that I can help with then please don’t hesitate to message me.
Hi I’m new to this and I have no diagnosis as yet although I have gpdnt a week in hospital having scans and tests to check my vision.on my notes other states interneuclear orthalmopegia can’t see and I have had 3 days of steroids now back home trying to cope as my vision is all.o effect the place. Feeling very upset as ghost is the first time I have experienced this and not sure of what treatment there us or how long research rposifes can last. Not sealing a miracle just to try and understand what I’m dealing with. Thanks Claire
Hi Claire
Internuclear Ophthalmoplegia is a problem with the nerves that control horizontal eye movements. Prism lenses are most unlikely to rectify this.
If you look to one side, one eye turns outward and the other turns inward. The eyes can turn through differing amounts inward and outward, and the view from the inner part of each eye (ie nearest the nose) is sent to the opposite side of the brain.
Apart from controlling the eye movements, the brain also has to merge the two images (one from each eye) - what we call fusion.
With internuclear ophthalmoplegia the horizontal eye movements are not properly controlled, and the brain is now trying to fise two moving images (and failing).
If double vision (diplopia) is a problem with the muscles that aim the eyes, and focus the light on the retina, then prism lenses work fine (I am seeing through mine right now). I cannot speak to the surgery involved in internuclear ophthalmoplegia.
Geoff