Hi, I have been on her several times and written about coping with my husband who has PPMS but is deteriorating slowly. I now need advice/help.
Our 8 year old as started to struggle with the fact that her dad is unable to do things and in a wheelchair permanently, falls asleep easily and is unable to attend some of her activities because of practicalities. We are now trying to find a book/CD or someone/something that can explain to her more about what MS is and the effects etc, I have tried talking to her but I don’t even know that much, except my husband is going to end up bed bound/house bound because he will use the use of his hands etc in time.
Any help would be gratefully received. We were told that there may be a MS nurse or something locally that she could go to, to discuss things etc and find or more information, but I don’t know where to start to find out if there is or when and where.