My husband is having a relapseat the moment. This has been going on around five weeks now. My seven year old daughter was aware of his MS but never really paid much attention to it until now. This relapse has hit us all hard. Its like we finally have to sit up and take notice, and we are discussing making plans and adapting our lives to make things easier (as well as negotiating the benefits minefield etc)
However, in amongst it all, my daughters behaviour has gone downhill.Shes been moody, full of attitude, and just downright nasty at times. She refuses to talk about anything, and it all came to a head the other day when her teacher asked to see me after school. Apparently the teacher had noticed her behaviour deteriorating too and it had all blown up when my daughter was said some awful things to another child in her class.
This did seem to open the floodgates, and my daughter has been inconsolable since. She keeps asking if her dad is going to die, and I try to reassure her. We have read the book from the MS trust, and have had a few chats about it.She thinks its unfair and why him. All the questions, thoughts, and feelings that even I as an adult find hard to understand, never mind her wee seven year old mind!
My question is, how do we move forward? Im finding it hard enough to hold it all together as well as to try and support her as much as I can without going to pieces myself. She knows to ask questions when she wants, and to talk as much as she wants about it, but her personality is such that I feel she needs more to help her through this. Is there some place she can go for support, or people she can speak to in the same boat? I have no idea how this works for her. I worry that we will go through it all again when her little brother is old enough to understand, and there are so many questions that I just cant answer.
Thanks in advance.