Omg, you certainly have been through it and I can totally understand why you’re being like you are and having no trust in the medical proffessions now and I don’t blame you as that’s just awful but of course everybody is entitled to their own opinion about these things.
Some medical professionals are just interested in the money/finances side of things but fortunately not all of them are and it’s just a case of finding the right one to help you, and suit you but this can be sometimes like looking for a needle in a haystack - so to speak.
I do think there is something about medicines/medication interacting with each other and I don’t think there’s being enough done to investigate/trial this but I suppose that would come down to time and money.
Oh, so you’ve got PPMS too, I’m sorry that it’s not looking good for you (is it for any of us) I was diagnosed with it in 2015 but it looks like I’ve actually had it for a number of years prior to that which explains a lot of things but well done you for taking charge of your own well being, it certainly sounds like you’re doing the right thing for yourself and I hope that it stays that way for you too :-)
Twinkle Toes x