Very basically, following GP referral I had two MRI’s, a lumbar puncture, two CT’s, an ultrasound and a whole battery of bloodtests back in Jan (private). I had a consultation in July (NHS) followed by another MRI the week after and a CT to rule out sarcoidosis. The neurologist said it was ‘99% likely to be MS’ but they would compare the MRI to the one I had in Jan to tell for definite and determine what type. He said an MS nurse appointment would follow to discuss treatment and I would see him again in October (I have been given the appt). Since then, nothing. I don’t know if the MRI results will come in the post but I assume so. I am obviously keen to start appropriate treatment. I feel in limbo and my emotions are all over the place. I read other people’s symptoms and think “oh I’ve got/had that symptom” but never even thought to tell the Neurologist that.
Also, I am concerned about being able to provide my employer with written confirmation of the MS (having told them verbally all that I know), although they are incredibly understanding and patient.
Am I being too impatient?