Hello everyone. New to the forum. Struggling to navigate the NHS at the monent and trying to work out at what point being pushy is even helpful.
I had an head MRI over a month ago expecting it to come back clear. I had odd symptons (numb right side of face and visual disturbance) which I put down to stress. When the MRI came back (the results were rushed through in 48hrs) there were 3 white spots on the scan. I recieved a phonecall to explain this and MS was flagged as a signicant possibility - I have been urgently referred but there are no timescales for this. My doctor said that nuerology would want to see me in weeks not months but it is looking highly unlikely that there will be any appointments for some time.
My GP clearly thinks there is some urgency here but has also been clear that as GPs they are unable to answer any more specific questions which are best addressed to the consultant but it doesnt look like I’ll be able to access a consultant for months. I appreciate the current situation and the need for patience but if I’m honest I am incredibly freaked out - even private appoitments in my area are booked up until October. Is there any support out there for those going through the diagnodis process?
Hi Fly
Be the pain in their arse they never wanted!
I know the NHS are struggling but so are you. Unfortunately it seems whoever shouts the loudest gets seen first.
It might not be in your nature to do this but what have you got to lose.
Sam x
You can always try the PALs service. They can look into waiting times for you.
If you have an understanding GP, you can always go back for a follow up, particularly if your symptoms are getting worse. They do have the power to contact neurology.
After 9 months of test after test and a locum neurologist who told me firstly I had ms then 3 months later that I didn’t but low level ms as no lesions in my spine and she was referring me to MS Specialist but still no referral after 4 weeks so I made a complaint to PALS as I am so unwell I have had to take sick leave. My advice is to write down your symptoms and the impact this is having on you. I also copied in my GP who has been absolutely fantastic and also sent an email to the neurology department. Within 5 days I was seen by the MS specialist who diagnosed MS and Monday I start steroid infusions. I hated having to write to PALS - totally understand the pressures in NHS but I had reached a point I can barely get out of bed and don’t leave the house anymore. Good luck chasing - it can be a long and difficult path and I hope you get some answers soon.