Guys I’m not dx, but wanted to post on here as I don’t get much response on new dx and limbo apart from a couple of lovely, helpful users (particularly Rizzo) who always respond to my posts. So I’m gonna try posting n this board in the hope some of you lovelies will give me some advice. Had suspected ON, lots of left sided issues this last few weeks and am waiting results of MRI, VEPs. However tonight I’ve had a horrid headache and Seem to be in some sort of relapse/ bad patch. What I was wondering is it common to experience the feeling of ice cold water inside your head with ms? It been driving me mad for hours. It’s literally like someone is pouring a jug of Icy water in my head. Very bizarre and maybe nothing but any help would be appreciated. Xx
this was one of my very first symptoms ,when i was 1st disgnosed,you describe it just as i did .i havent had it since,
my feeling of icy cold water,also went down my spine,i also used to get burning patches on my body, followed by icy feelings. tell yourself it WILL go off,mine did,and hasnt come back.
Does it feel like you actually have water swooshing in your head? This is what my 20yr old daughter worryingly describes, alongside feelings of water running down her leg (I used to have this water on the leg feeling but not in the head).
It’s exactly like a cold jug of icy water is trickling down the inside of my head! Most bizarre I have to say. I’ve had it before in other parts of my body bu this in my head is weird and annoying. I keep touching my head like I expect it to be wet? Thanks so much for responding I know this is not the board for peeps like me who are not dx yet but I really needed some advice and I was obviously right to post on here. Thank you, than yo for replying to me. Jxxx
Hi and welcome over to Everyday living. Of course you can post here… you aren’t restricted to the Newbies board until you are officially diagnosed
As for the ice cold water feeling, firstly I suggest contacting the United Nations as Water Boarding is a recognised form of torture and is against International Law… time someone told MS that
Sorry, sorry, shouldn’t be flippant. You might not appreciate my warped humour and in my defence I am a bit out of it at the moment because of being on morphine so do excuse me making a blathering idiot of myself…
Erhum. Trying again.
Hi and Welcome,
Yes, the cold water you describe can definitely be an MS symptom. I used to get it running down the back of my legs but I don’t see why it couldn’t happen on your head just as easily.
It is one of many weird sensory symptoms and comes under the term of neuropathic pain. If you do a google search you’ll find heaps of stuff on it but here are a couple to get you started
if it becomes really bothersome or the headache is still there over the next 24 hours try contacting your MS Nurse (if you have one) your neuro (if he/she is contactable or your GP to discuss some meds to help with it. Amytriptiline is the usual gold standard fior this sort of discomfort but there are lots of other meds that work really well too.
All the best and I hope it settles soon,
B