As a relative newbie to the MS world - I still get a bit confused by the terminology. When Gabapentin is used for pain, does this cover all types of pain? ie. burning pain, tearing sharp pains etc?? I’m finding that it is not the pain causing me issues as such, I can deal with that as it is currently.
I have constant burning in both legs at the moment which varies in intensity throughout the day. The longer I’m up and the more I do (just normal stuff, househould/dog walking/shopping/cooking etc) The more it burns! I also get crampy feelings and stuff.
But the minute I stop and go to bed, the twitching and electric-y spasms start in my legs and groin- resulting in a total of about 12 hours sleep over the last 4-5 days which is the bit I’m finding hard to deal with. The spasms are so sudden that all my back muscles go tight!
Is this spasticity, or spasms??
Dealing with a new diagnosis is one thing…lack of sleep I cannot cope with. I don’t feel particularly stressed, in fact I don’t feel much of anything at all considering the year I’ve had. I feel as though I should be feeling more, emotionally, it’s rather odd.
Amitriptyline has not helped at all, and have trialled CBD purple oil too, with no noticeable benefits.
I agree with trying to avoid meds where possible and am in no rush to try gabapentin etc.
Any tips anyone??
I don’t know if I’m relapsing as have had symptoms of some type for over a year in various bits of my body!
Still waiting for Neuro diagnosis letter, he seems to think RRMS as I have had subtle symptoms for the last 20+ years which have been shortlived and remitted 100% - but am also confused about this as I don’t seem to be remitting at all now.
Blaahhhhh!! Sorry I’m insensible with lack of sleep. Soooooo tired but it just won’t happen!
Have to be up and out at 7.30 tomorrow (today??) for a craft fair to help my 14 yr old daughter fundraising to go to Africa.