Yesterday I had an appointment at the hospital, I had a chest infection in December and it has made my symptoms worse. Tremor, right numb side, exhausted, can’t think, dodgy left foot, waking up. You name it, the usual just more of it and quite intense. It has been most unpleasant. In fact, my swearing has increased to a monumental scale.
So yesterday, the M.S. nurse has upped my Gabapentin, it makes me feel fuzzy (and makes me fat) but the upped dose is till things get a bit more stable. I do small things at the moment so it won’t make much difference to my daily life. When the symptoms have gone down, I will lower the dose a bit. I also have pain killers but I am very careful about balancing out which I am taking, what I am doing (or not doing) and if I need everything, I make sure it is a day when I have complete rest and don’t drive.
I have learnt, for me, to take advantage of the unusual hours. I go in the garden, look at the moon and stars, I have even been known to be in the shed at 2 a.m. I read, watch horror, go on netflix, get out my old recipe books, do bed-stretching and relaxation breathing. Much better than wondering why I am awake. Apparently in the paper today, it says that this is the way to go! Smaller hours of sleeping, squeezing an extra day in when most people are awake. Also, I am on here a lot in the middle of the night. It helps a great deal.
Saying that, I slept all last night for the first time in a long time, I didn’t even get up for 13 wees. So perhaps the Gabapentin is working already.
I have found that the burning and weird sensations, have been helped my a bath or shower late on, massage, rubbing oil in my lower legs and feet, then wrapping a nice soft sock round them. It helps ease about 10% I would say, but it is stll 10%.