It seems my first post disappeared ha ha, so if this is duplicated I apologise in advance.
I used to be on here as TomC, I left as I was undiagnosed in Limbo and felt it was unfair to to be part of such a helpful community when in reality I may not have had Ms.
Nothing has changed,
Its 3 years on and I am still undiagnosed, I am waiting on a 2nd opinion through a different hospital, (appointment letter pending) as from my last meeting with my Neuro she informed me, that she expected me to get better and that it may be that the damage has been done.
i.e I have a lesion in my brain, suspected one in spine, I have had every test imaginable but as I do not fit the Macdonald criteria, or in my Neuros words (your symptoms are not indicative of one disease)
I have come back because I have been struggling even more so physically and mentally and everyone was so hopeful I now wish to remain within the community to help where I can but also (selfishly) to enjoy the emotional support of knowing I am not alone.
Not being able to do half the things I used to sucks as it is but with no support, makes it so much worse. My wife has still been incredible throughout but I know she doesn’t understand fully.
Anyway, I am glad to be back and look forward to chatting with you all again soon. No terrible guitar playing this time.