I have been taking Sativex for a number of years but recently I am waking up feeling completely dry mouthed and parched.
I hydrate throughout the day and evening but if I take loads before bed my catheter bypasses.
I am on this forum for the first time so hey everyone
I have had primary progressive MS for over 30 years.
My Topic is hydrating tablets which I am considering using for this.
I will ask my Neurologist and MS nurse but I have seen them fairly recently so I thought I would seek out other MS patients who may have used them and any other suggestions?
I’ve been taking sativex since the later part of last year, I’ve had reduced saliva since diagnosis and regularly use biotene gel and salivix mouth drops both designed to enhance oral moisture. I also use sugar free gum, as have found it’s quite helpful when out and about. But if you start to get a sore tongue get it check as when you suffer from reduced saliva it can make you more susceptible to oral thrush. Both oral saliva substitutes can be prescribed or you can buy them over the counter, depending on your financial circumstances as they can work out expensive when you need on a regular basis. I hope you find some relief, as I know the impact it has on so many things.
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Hello all, I use a moisturising mouth gel. It works well but tastes a little weird. Unfortunately it is only available from the company’s website. Brand is Oralieve.
I found it by googling because my mouth was so dry my teeth stuck to the inside of my cheeks!
Yes, you can buy it on Amazon, or your GP can prescribe it. It’s mean to be very good, but unfortunately I can use it because it contains lactose in the ingredients. I use the biotene mouth gel, and that has no flavour to it and it does help.
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Hi! I’m part of the team at McCallum Dental Hygienist in Langford. We often help patients manage dry mouth and maintain oral health, so I thought I’d share some general advice.
Reduced saliva can definitely increase the risk of tooth decay, mouth discomfort, and oral thrush. Saliva substitutes, sugar-free gum, and staying well hydrated can all be helpful for some people. If you notice a sore tongue, white patches, or persistent irritation, it’s a good idea to have it checked, as dry mouth can make you more prone to oral infections like thrush. Regular dental visits and good oral hygiene are also important to help protect your teeth and gums.
I hope you find something that brings you some relief.
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