I was diagnosed with RRMS in November, about 10 months after noticing first symptoms (numb feet, limping, etc). I’ve since seen my neurologist a couple of times to discuss treatment options and he has now prescribed Rebif, but I am still waiting to hear from an MS nurse to actually begin the treatment. The neurologist and the MRI radiology staff are the only medical people I’ve seen since my GP referred me.
How long is normal to wait to hear from the MS nurses after diagnosis? I’ve seen a couple of threads suggesting that people have been seen within a few days or a couple of weeks, whereas I’m now at 3 months and counting. I’m clearly keen to see someone and start on the DMD to try and limit future problems, and the neurologist did his nut at my last appointment when he found out that I hadn’t been contacted. I’ve left messages with his secretary to advise that I still haven’t heard anything, but no response.
To complicate things, I’m not entirely sure which MS nurses I’m supposed to be seeing - although I live in one county with its own hospital and MS nurses, I’ve been seeing the neurologist in the neighbouring county where I work, which has its own team.
Any advice on who to contact and how to progress?