I know I should have learned patience by now! I was diagnosed with RRMS on 24th October and the Neurologist said
“We will get you an appointment with the MS Nurse and started on DMD’s straight away and I will see you again in 6 months. Now whilst you are waiting for your appointment arm yourself with as much info on the various DMD’s so that you can make an informed choice”
“How long will I wait for an MS appointment?” I asked
“Not long” was his reply
I was stunned to get a letter through the post only two days later from him however it was arranging my appointment with him in May 2018! I have not received confirmation of my diagnosis (that I asked for) or an appointment with the MS nurse. I was just wondering how long these things took for those who have gone before?
I am trying to be patient but I feel like I am in a new type of limbo now.I have a diagnosis but no meds, no written confirmation or MS nurse. It all feels a little surreal, the consultation with my neurologist is fading from my mind and if my Husband hadn’t been with me I might have convinced myself that I had imagined it or got the wrong end of the stick!
I know be patient I hear you say! x