Hi, I am not sure if I am about to be self indulgent or helpful.
a lot of people seem to come here who want to understand how those they love feel.
i can tell you how it feels for me, that does not mean that this is how those you care about feel.
Ok, here goes; two years of knowing I have ms I am not ok with it. I am not ok with the day to day affects & I am not ok with the fear of how much worse it could get.
what do I ‘show/ share’ ? I am ok, I am light hearted about my challenges, I tell, I just don’t do ‘poor me’.
What frustrates me is that others don’t seem to get that although I give the impression I am ok with it, truth be told I am not.
i struggle with what I tend to feel is their stupidity. Or, their selfish choice to not really hear. So yes I am angry a lot of the time, but would anyone around me realise that ? No.
i don’t know if this is helpful to anyone, I hope it is,
but my last bit, big hugs to one and all, weather you love someone with ms or have it your self.