Howdy! I’m just curious about others experiences, I know they’re all different! I’m currently experiencing, what my doctor seems to believe is, a relapse.
Roughly a month ago I had back to back migraines for a week straight. Ice pick headaches have come back and I had a new migraine type that was like a wave every so often of pain. Over the last week or two old symptoms have come back (fatigue, irritability, tingling in my hands, numbness in my face, etc.), but also I have MS Hugs, I think (which I’ve never had before). I reached out to my Neuro because I thought the chest tightness was maybe a chest cold that hadn’t showed all it’s symptoms yet because it was just tightness with a shortness of breath when it happened (no cough/fever). He requested a thoracic and spinal MRI be done as my last one was in April 2024.
So now I’m curious! How have your relapses progressed? I haven’t had a full blown relapse yet (my MS was diagnosed by accident due to a month long migraine we couldn’t get rid of) and I have always read that they come on pretty suddenly over the course of hours to days but this has been several weeks for me! Plus my next Ocrevus infusion is coming up next month and I chalked it up to crap gap until he mentioned a new MRI. I’d love to hear everyone’s experiences though!
Hi Sky. I think that the thing with relapses is that the effects can take anything from weeks to months to die down ( and they rarely disappear completely)
Yeah that’s what I’ve heard, I’m more curious about the build up of it, I think! Does it always come on suddenly or can it take forever to reach plateau?
I can’t say for sure but I expect there is no standard pattern. Probably depends on the location and size of any new or enlarged lesion. I remember my first relapses developed over a course of about 2 to 3 weeks ( over Christmas and the New Year!) and took maybe 2-3 months to die down
I’m just speculating out aloud here but I suppose that if you have several lesions or several old lesions that have become inflamed for whatever reason then you could experience a sort of extended development of new symptoms or worsening of old symptoms.
I know that I have ‘quite a few’ lesions in my brain but not too many symptoms. I do sometimes worry what would happen if all the lesions suddenly became worse
My relapses (sensory and motor) have tended to start in one place/system then spread and intensify over hours/days/weeks/months before receding (as much as they’re going to) in much the same pattern. Visual and hearing relapses have been a similar pattern.
Hi @Sky i wonder how long it lasted for you and what happened afterwards. I have been going through a relapse for 6 weeks now which jas also started with an MS hug and increased numbness in the legs and leg weakness, both the hug and the weakness in the legs are new. I am now due a relapse clinic session with one of the neurologist of the NHS team that follows me and an MRI scan of spine and brain thereafter …. I just hope the whole of the symptoms will soon fade but they show no signs at the moment.