Hey people. Just wondering how quickly your symptoms start or carry in getting worse for when you are having a relapse. Is it just a couple of hours ? Or days ?
Mine come on over a few days I start with a weird dying feeling like someone pulled my plug, this goes off after a day but leaves me totally wiped out I then seem to pick up quite a bit.
Then after 5 days, exactly I get the dying feeling back and that’s the start of a long few months where I can hardly function much at all.
The other symptoms come along too depending on where my MS chooses to attack.
I don’t know if this is the answer to your question as I have PPMS and therefore do not get relapses.
However, there are days when my joints ache, have a pain behind the eyes and generally feel like I’m getting a cold or the flu. I don’t get a cold or flu and the feeling goes away after a day or two.
The reason I get these symptoms could be that I’m having a flare up of an infection.
John
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My relapses seem to come on quite quickly. I’m not aware of a period of worsening symptoms.
The thing about RRMS is that it’s different for everyone. I suggest that you keep a relapse diary, making notes of when the symptoms start and how quickly the relapse develops.
First there are is anything from a few hours to a few days knowing that something is wrong but steadfastly refusing to acknowledge it.
Second it is no longer possible to ignore that a relapse is definitely revving up, has become unmistakably distinct and will get stronger and (in the case of sensory things) more widespread relentlessly over hours or days.
Third it peaks and stays stable and as bad as it is going to get for weeks or longer.
Fourthly is starts to recede along the same pattern as stage two in reverse.
Finally it stops getting better and what I’m left with, I’m left with for good.
Just to make it interesting, my relapses tend to come in waves, so when one thing is approaching stage three, another is tuning up at stage one, and so on. So the arrival of the first relapse out of nowhere is usually the start of a wave or 4 or 5 separate issues, each with its own trajectory, but all part of a burst of general disease activity.
I have to say that this is an increasingly distant memory, fingers crossed. Five years on Tysabri and I haven’t had any relapses at all.
Alison
Thanks for your reply’s everyone. Alison when you talk about waves do you mean another symptoms appears during the same relapse at a different time? Because over the past year I’ve noticed then when I have a relapse and say a couple of weeks after that I have another relapse or symptom. I now it can’t officially be a new replase so would it be classed as the same one even say weeks later ?
Yes, I mean that (for instance) as one thing is fading away, the one behind it is at its height, the one behind that is just getting going. Whether that counts as all one relapse or several distinct ones is something I have never really bothered about, TBH. For sure, they all flow from a particular burst of disease activity. Usually it only stops going off like a firework display when I finally concede (far too late, usually) that a blast of IV steroids would be a good idea.
Alison
Same kinda thing I go through then. What do your relapses usually effect ?
siyman, I have had RRMS for quite a little while now. While the list of what my relapses did NOT affect would be a shorter one, neither the long list nor the short one would be terribly informative.
Alison
Sorry, that wasn’t very helpful, was it? If you read through a list of the bits of a person that common-and-garden MS seems to find particularly tasty, you can rely on some of those having featured on my charge sheet.
Alison
That sounds like a right pain in the arse lol.Ive kind to get to now my illness if that makes sense. Im Used to what part of the body it mite effect touch wood. But then again every now and again it throws me a curve ball
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