Hounded.

Hello, everyone.

After a fall and a visit from the para-medics, I’ve been referred back to adult social care and my GP. Since then, I’ve been contacted by three agencies. Now I know they want to help but something inside me wants to be left alone. Then this morning someone on the phone told me they’d put me forward for physio. Am I being such an ingrate for my sentiment? Is it selfish? I do Ok but sometimes I need a bit of help. I sound like my dad who’s 87 and had two strokes. He has eschewed all outside help. He has family, good neighbours and good company.

What’s the answer?

Best wishes, Steve

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Hi Steve, I suppose the various agencies & departments all have a sheet of paper to complete, and once you’re in the paper trail system it’s hard to get out of it.

I don’t know what the answer is but no harm in trying some free physio, you can stop if it seems daft.

You’re certainly not ungrateful to the departments contacting you, they are disturbing your life which you are currently content with. Let them know how important it is to you for independence until you want their services.

Take care Steve,

Chrissie x

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On the other hand, some people are dying for a health service like ours. Literally.

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Hope you’re ok Steve. I’m off most meds right now as I’m near the end on a clinical trial - consequently, I’m sore, stiff and pretty cranky to be honest. However, the physio in London did talk about getting me some pysio.

It did get me thinking, most of it seems to be about timing and how able I feel to deal with it. Right now, a week Thursday is my point of focus cos after that I can take regular meds again! After that, the kidney stone is next medical ‘task’ so if physio can happen in the new year, I’d be up for that Right now, I’d dodge anything I could to have a bit of time off

Give it a few days and see how you feel. With Christmas just around the corner, it’s hard to focus on yourself too.

Sonia x

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You are correct Anthony. We are lucky or I am lucky that people care and it’s a genuine care. Bea me back down to earth Scotty.

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I know exactly what you mean Steve - I want to be left alone too (bladder/bowel referrals are my mental barricade). However, if you are falling and need help from paramedics please don’t reject physio. I have had been referred to neuro-physios on 3 separate ocassions and each time they have been incredibly useful.

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Hi, Steve I know what you mean , but I’ve had to get my head around it, and I have to say when you have a system in place, that you are in control of and you have chosen it can be extremely good. When i was really ill in May 13 Lee was taking so much time off work my son was still living here and good friends rallied around…I was so scared, I desperately wanted to be back and as a mum was very much needed, it couldn’t carry on like that Lee didn’t want to give up work, We were given a lovely social worker who knew i needed help, at first I had 8 weeks of something called “re-enable” i didn’t like it the staff were kind but it made me feel sad and out of control, then i got direct payments , id had a small amount of direct payment hours for years for my autistic grown up daughter and also Molly it was minimal but I’d used it for a “mums help” which was Christine …she was our Mary Poppins…now I needed the help …I hated the thought, but it was the best thing i did … Christine became my Carer along with Adelaide and Greg I receive 18 hours a week it means i can have someone 4 days and Lee tries to work from home the day i have no-one. They are all brilliant, and i never feel patronised…I’m in control because ive picked them. I don’t use them for intimate care yet…We have a giggle and i say that they sworn to secrecy… and Greg he is my maintenance man / Gardener, he’s Lees best friend and he comes every Tuesday…our garden is like a paradise…he’s in the middle of designing ramps for me…you can make it work for you. When i was first given the hours i was told, some for help in the house, some for appointments and some for social things…I got my social worker to agree Greg as my support in the garden…that was my social side i love my garden and having Greg meant that i had a place to sit and enjoy, he’s made me a little hut to sit in and planted loads of veg this year…something i always did. None of them ever take over and because I have open insurance on my car they can all drive it, Chris is taking me to my hospital appointment this afternoon.

Don’t rule it out Steve, It is like Wheelchairs…people hate them but as we know they can give us our lives back independence ect…this is similar, for me it means I can be a mum…I can take my children out because I am getting the rest and support, I can be a Grandma to the twins because I have people tidying my house and enabling me, conserving my energy and i always know that i an rely on them. I’ll often have my twin granddaughters here, i will be playing while Chris or Adelaide are tidying up or making tea.

I hope that helps.

Michelle x

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Steve last time I was bombarded I got hospital bed (it’s been brilliant) physio including hydro and my through floor lift and a more suitable wheelchair so whilst at the time it was manic the aftermath of them all standing round me and all talking at once etc etc has been ALL good. Plus other medical stuff as direct result of it. Both Heather and I said all we wanted was a bit of help but now we have come out the other side we wouldn’t change a thing.

Don

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