Hi....i.m new to the forum

I have recently been diagnosed with FND …I feel so relieved that I have found this forum where there are people who understand and experience similar difficulties as myself … I have lots of questions to ask and hopefully i can answer lots of questions too…

1 Like

I am sorry that you have been having a worrying time. Have you found neurosymptoms.org? Maybe your advisors or your own research have led you there already? It is the best resource I have ever come across on what FND is and what it isn’t and how to think about it if you’ve got it and explain it to others,

Welcome Nettie…

Hi Nettie,
Welcome to the forum.
My wife had an episode “if that’s the correct term”? a few month ago. She woke up one morning with what she described as really bad cramp in her thigh with no way to stretch it out. After a couple of hours the cramp was getting worse and she was in agony with it and could not put her foot down. The back of her thigh was now rock solid and she was in so much pain we called 111 and they suggested she went to hospital. Long story short she couldn’t walk without a stick for around 6 weeks and off work for 9 weeks. The specialist said it was FND and suggested had she been through any injury or trauma? Ironically the only thing that had happened to her prior to the episode was, as she walked into our bathroom the wooden bath panel fell and hit her right on the side of her ankle bone, although painful at the time she thought nothing more of it. The hospital did x-ray this as a precaution but there was no issues.
So, although not directly affected by FND I have seen this first hand and although my wife seems fine now, everything happened so fast and was very debilitating for her.
Can I ask, do you have regular episodes or does it vary?

1 Like

Hi…your poor wife…my symptom started with tingling and numbness in thighs…progressing to pain in left leg then loss of balance / coordination and unable to walk without a stick for 6 wks…then no symptoms for 3 wks…this became a progressive cycle over 3 months…i got my diagnosis of FND about 3 weeks ago…i am still learning about it and worried about what the future looks like…it looks like i will have to leave my job…i feel like ive lost myself and the worlds moving on with me tagging along…however this forum is definitely helping me even the i am also new to the fforum…i feel that i u all get what im saying but my friends and family dont…sorry for the long rant…please tell ur wife ranting definitely helps…alot

Hi Nettie,
I think she already knows ranting helps :rofl:
She was diagnosed with Fyermyalgia a few years ago and has random aches, pains and electric shock type events every so often and when she had the other problems they were happy to just point it to the Fyermyalgia, but as it developed she was sent to see the neurologist who said it was FND and pointed her to a website and she was literally fobbed off as though it was nothing?
Although her leg is better and she can currently walk without the stick she still has numbness, dizzy episodes like vertigo and she often says she feels like she has wet her self, although she hasn’t its just the sensation. I feel it will be ignored until she has another episode that causes her so much pain and loses the ability to walk properly before they dig deeper and try and do something about it?

Her symptoms sound very similar to mine…i was told there is no cure and it is a case of ‘managing it’ with medication and therapy…its hard to get ur head round cos its so life changing…but im trying to not think about too much at once… it sounds like u are are very supportive…i think if we didnt have a forum like this to share…i would feel very isolated and scared…i really appreciate u sharing ur story with me …