Desperately need advice

New diagnosis and before diagnosis
1

Hi all I have posted once before but got no replies! Not moaning but need advice. Things are going down hill so fast it’s scary! Had a lot of pain in my hip and leg (amongst other places) but now I can hardly walk. Is it possible for things to deteriorate so quickly. Any comments would be gratefully accepted. Thanks x

2

Hi, sorry you didnt get any replies to your last post. I try to read the boards most days and if I see a new post without answers, I worry that person may slide away and suffer in silence, so I jump in to offer support if I can.

Have you seen a neuro yet or been referrred?

My own progression from being full able to do whatever I wanted, to having serious mobiity problems, took around a year.

If you`ve not been investigated yet, as your GP for a referral to a neurologist.

luv Pollx

3

Thanks so much for your reply,I have neuro appointment on march17 so hopefully get some help them . Even if it’s just a big mallet to knock me out with!

4

Hi Don’t know if your DX yet, but last April my problems started and I went seriously down hill over 4 months, but slowly improved over the last 6 months still having problems but never thought I would get back to how I am today. So hope you feel better soon Gray x

5

Thanks Gray it helps to know that others have similar problems. Not dx yet just started down that road, so still in freak out zone. I keep finding new things wrong everyday and sometimes think I must be imagining things. Horrible to think that there are so many people out there suffering

6

Hang in there Minton and hopefully your neuro will be able to help.

pollx

7

Hi,

Im in a similar position as yourself. I too am waiting on my first nuero appointment (13/03/14). Meanwhile my mobility is so bad I struggle to walk and its both scary and frustrating! With no diagnosis as yet I feel like I’m dealing with a crazy illness that I can do nothing about and can get no help until I see a neurologist! The waiting times are so long and meanwhile I have to try and continue living with the unknown. I hope you get answers soon. Good luck with the neuro!