Oh wow so yours has been going on for a while then? Yes I’m glad I got the diagnosis as at some points I thought I was going mad and some how making these things up because there was no explanation so I’m glad I’m not going mad but I’m just struggling with feeling so angry at the moment and I just want to snap out of it but I can’t seem too, is that how you have felt? How have you dealt with it? Not on any dmt at the moment I’m waiting for an appointment with the ms nurse to discuss options, are you?
I don’t really know how I feel yet to be honest as I am still in denial about it. Until something incredibly painful happens I am going to keep living as normal as I can!
Agreed! I feel like when I kept going to the doctor they thought I was being a hypochondriac! My anxiety doesn’t help much as I worry constantly about what’s to come! Do you feel the same?
Unfortunately I’m a bit doom and gloom at the moment, I’m just so frustrated and feel like no one is listening. I’m in so much pain to the point that I can barely use my right arm and I am covered in pins and needles and I feel exhausted but to the point where I can’t function properly but there’s no where to go to for help. So at the moment I just feel very alone. Sorry not that you want to hear any of this. X
Awhh don’t worry my love and I am so sorry that this is happening. I am always here to talk, I may need to one day dependant on how my MS progresses. Tell me about your symptoms as this is what I am terrified about everyday. I mean I smoke as well which I think now is the time to give up or will progress faster I guess!
Thank you . I’m not sure if it’s anything to do with the MS the doctor seems to think it’s not but I have a pain in my right arm which just burns and feels like something is cutting the circulation off so I can barely use it now, I have pins and needles in both hands, both legs and on my face and after leaning over the bath to wash my hair last night the world starting spinning and made me feel sick. So I’m really not too sure what’s going on. I vape and the consultant never said anything to me when I told him but I’m not sure how it all affects it. X
I see! Bless you… I’m so sorry you’re going through that. I tried vaping too but was effecting my heart so back to ciggies!
I am going to try and quit perminantly I think. Oh no! I had really bad vertigo last year and I didn’t even concider that it may be to do with the MS this was for about a month it was going on. It was really hard so I know what you are going through.
Oh that’s awful what happened? That’s the thing though isn’t it if I wasn’t vaping I would be smoking cigarettes too.
It is awful isn’t it, as I said I have no idea if it is the MS but I’m not sure of another reason for it all but I could be completely wrong. It’s the whole going mad thing again isn’t it! Do you have any symptoms?
Oh with regard to the e-cig situation I’ve been having irregular heartbeats too - don’t know if this is anything to do with the MS think not! The doctors are useless sometimes I’ve been waiting for a 24 hour ECG for around 2 months on the waiting list and that’s after being in a&e 3 times for 8 hours each time for the ECG they do there to be fine as I’ve waited so long it’s back to normal. It’s after I eat anything or drink anything it’s just scary to be honest so the MS isn’t that worry some at this point!
It does sound a lot like the MS though thats the thing but then again it could be something different! Just need to get a few different opinions I think! Symptom wise I was getting a little bit of vertigo for around a month and on and off pins and needles and dead leg and then one side of my face I had pins and needles and numbness. Just worried about the future effects! I am not that good with pain so just bit worried!
Mentally how are you feeling?